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Hey all! Wow... The experience Frank and Phil speak of is so different from what I have experienced the past three years that I have been fighting this dreadful RSD Monster. I am female, sixty plus, and until about three years ago... was in great physical condition. My job was QC Inspector, plus I live in the middle of nine acres... alone, and loved all the things I did to take care of myself and anything to do with outside work. My rsd started after I fell at work breaking my right hand. From the get go... My pain was not in the area of the break and where the other chip bone was. I kept complaining with my wrist and elbow. My skin was so sensitive. I felt like I had fire inside my arm and hand. I suffered so much pain... went through week after week of pt and at different times had stelate ganglion shots. Some helped for a few hours to a few days. I was sedated each time until the last two. I never felt any kind of relaxation, only the pain of having needles poked in my arm to receive the medicine(sedation). The needle for the pain block didn't cause any pain. So last couple of times I ask the dr. could I have the nerve blocks with out sedation... I could tell little to no difference. What I really want to talk about right now is how I am feeling for the past several weeks. I ran across an article somewhere, maybe first heard about it on TV. It was about taking large doses of vitamin D. I started taking a thousand units of vitamin D a day... after a week, I went from an eight and up level of pain, to a four and below. My dr. is now slowly taking me off lyrica... But! I am starting to feel more of the burning pain in the complete right side of my body. I have a problem with my body jerking backwards at unexpected times... I don't, or have never fallen but to people around me, it looks like that. I have also had to stop driving. I do drive to the store, about five miles away, and back, but even that is not a good experience. If I can watch the middle line in the road, (like keeping the marker wheel on a mower at the grass line) I can do that pretty well just a few miles. If I listen to the radio, or think about anything that I take my eye off the road for just a few seconds, I will be across the road, or heading for the ditch. Don't know if that sounds familiar to anyone, but the Dr. seems to thing that is also a side affect from Lyrica. It's wonderful since I starting taking vitamin D to get a break in the the deep pain... Now I want my independence back. I am the youngest girl of eleven children, and my sisters that range from seventy two to seventy nine years of age, drive from Illinois to Indiana, almost two hundred miles one way to take me back home for visits. Also come here to help me do some of the work I have problems with. Since taking one less Lyrica a day, I have also started taking off some of the weight gain Lyrica caused. I just pray that I can soon stop taking so much medication. At least for now it's one day... one medicine at a time, and lots of praying for God to give us a miracle, actually another one. I feel like hearing about, and now my daily vitamin D intake is a miracle. That is what a difference it have made in my life. Ok, Good luck to everyone in which ever way your dr. and the medicine you have to take... takes you! Just keep praying, trusting and believing in what you are doing. God makes a difference... I know in my life he has! One more little tidbit of information... I had to take early retirement a year ago, so I have time now to take better care of myself, less stress... but, still fighting wc for some kind of settlement. Thanks for taking time to hear about some things that work/don't work for me. God bless all of us! ladonna |
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