What sort of surgeries did you have?  I have noticed a lot of people saying their RSD started after carpal tunnel surgery.  How soon after one of the surgeries did the RSD symptoms start?  Are you planning to sue the surgeon for malpractice?

 

As for the symptoms, my son's condition has mainly been improved by alternative medicine.  Nerve blocks, spinal column stimulator and land physical therapy either did not work or made him worse.  What has worked to improve his condition (other than mask the symptoms as medicaiton does) is alternative medicine and hydro therapy.  Unfortunately, as soon as he was able to "walk" in the deep end at hydrotherapy, they threw him out of that program into a "community" program where he was unable to do the exercises and get the treatment that were making him better.  It has taken a couple of months to arrange for him to resume the original therapy but at the evaluation, he was told he can only do it for 6 weeks!!  So, another fight and probably I will have to find another facility which is not easy and will be far away and all car journeys hurt him. 

 

Even better than hydrotherapy, are pk injections with glutathione.  He was having them twice a week which I felt was stopping the RSD spreading and slowly getting him better.  Now he has them 3 times a week and he is getting better faster - definitely in less pain.  No more pain attacks were he is racked with pain for a few minutes or for hours on end.  Before, he could not speak when in severe pain.  Now he tells me in a calm voice that he hurts - an amazing difference.  Unfortuately, we do not get reimbursed for this treatment and it is expensive.

 

Good luck.  My son lost most of his friends but the few that stuck around he treasures and their friendships have deepened.  It also helps to join a group of people who understand what you are going through like this group.  Of course, I am removed from the experience of RSD bc I am not the one in pain.  But I see what a devastating illness this is and nobody has ever heard of it!

 

It took us months and years to understand how to deal with this disease.  The doctors do not know and you have to try everything since it seems that different treatments work for different people.  Don;t give up hope - there are people out there who have been cured or who are in remission so it can be done.