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Type 1 : Type 1's w/ Addison's Disease and other autoimmune diseases
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Recommend  Message 1 of 3 in Discussion 
From: MSN NicknameRebbmoss  (Original Message)Sent: 2/6/2008 1:22 AM
Dear Group,
I would appreciate any Type 1's with Addison's Disease to post what their symptoms were and how it, and other autoimmune diseases, may have affected their Diabetes control and general health.
I have been a Type 1 for 33 years, now age 46, and take Lantus and Humalog. In the last 15 years I've developed rheumatoid arthritis and Hashimoto disease. In the last 10 years, I also developed sleep apnea (central, I'm not overweight), neuropathy, frozen shoulder, depression, gastroparesis, menstrual problems.....and have many symptoms of Addisons.
I did halfway decent until the last 6 years, now I'm unable to do much of anything, not working, and hardly living at all.  
I've had a cortisol check in the DR's office and he said it was fine. My blood sugars are all over the place, following no patterns or logic whatsoever. Sometimes I wonder if I am having insulin resistance and have even thrown out insulin believing it could be bad. 
I've followed treatments, done research, and nothing gets better. The medicare insurance I am now on, leaves too much for me to pay to have excess testing.
I would really appreciate hearing from anyone else who might recognize themselves in my story and tell me how they found answers.
I had a really great job, raised 2 children, had hobbys and responsibilities I kept.
Now I don't even feel like going to Doc or handling daily chores. This is not what I fought all those years for. I can't help but feel there is an answer if someone would really dig for it. I have tried different doctors and even moved to a different state. My fantasy these days is to be put in the hospital and have a DR., like HOUSE on TV, put me through the ringer. And I really hate Hospitals! 
Have any of you been through similar circumstances?
Also the pain and limited movement from frozen shoulder has not gone away after rehab and 3 years. Xrays show no severe Arthritic damage or other shoulder injury. I've read that Diabetes can cause deposits in the shoulders that may have to be dealt with through surgery. Anybody been treated for this?
 Thanks for the Group's help!!  Rebecca
                                                LA (Lower Alabama)


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Recommend  Message 2 of 3 in Discussion 
From: sarahQSent: 2/6/2008 8:16 AM
Hi Rebecca,
I have addison's disease. It does take a long time for a endo/gp to get round to the idea of thinking along the lones of addison's.
I had the magic illness called it's your diabetes control it . It took my nr death before my Dr actualy woke up to the fact I was very ill.
http://addisons-diabetes.gkznet.com/phpBB2/viewforum.php?f=1  this site is very good go have a read.
 
Also here are a list of all the test you need done,
 
Doing just a cortisol test is a complete waste of time the gold standard test is the  ACTH stimulation test:
I do hope you find answers soon once I started steroid replacement it was like a corpse awakening.
I've been diabetic for 43 yrs. Have the bad shoulders but these were due directly to an accident as to whether they ended up so bad due to my diabetes I do not know.
You really do need an endo though to sort you out.
Give a shout if you want any more info. My email is in my profile.
 
Please could you use a larger font so our partialy sighted members can see it ta very much.
 
Sue (SarahQ)

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Recommend  Message 3 of 3 in Discussion 
From: MSN NicknameRebbmossSent: 2/21/2008 12:12 AM
Thank You Sue,
Your info and links were very helpful. My new doctor has scheduled me tests. Thanks So Much, Rebecca