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Getting To Know Each Other
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  Name Disability Location Interests Personal goals E-mail Comments Updated
View the details of this row. dolphin dystonia (born) several others resulting for drunk driver canada dolphins , needle work , music keep walking [email protected]
I was born with dystonia ,in1996 i was hit head on by a drunk driver , after i came out of coma the docs told me i'd never walk again , they where wrong , i have osteo arthritis in every bone that was broken and except for arms that was pretty much all of the rest . I like to laugh and my sense of humor is just a tad wee warped , looking forward to meeting all of you .
6/7/2002 
View the details of this row. Duch58 Scoliosis, on oxygen 24/7 S.E. U.S.A. Friends-Pets-Flowers-Family To live each day the very best I can [email protected]

Joined this group to have links with new friends, and find out things that could help me live a better life, and cope with my illness in a more productive way.Despair is never the way to go.

3/25/2002 
View the details of this row. MSN NicknameEdwardJanus Cerebral Palsy NORTHLAKE. IL   PLEASE READ MY STORY AT MY WEBSITE. [email protected]
I am a member of this fine community. I have Cerebral Palsy.
 
Please visit our site
 Janus. Edward / My Story
It's about Sharing, Caring and Healing.
 
Sharing and Self healing (G)
We are members of  'Top 100 MSN Communities'
 
7/22/2002 
View the details of this row. flagirl Pinched nerve in neck,three herniated discs in back Florida Gardening, cooking,computer to get the pain out of my knee and go to work [email protected]
I enjoy chating with others with disabilities, you don't feel as if you are alone.
4/16/2001 
View the details of this row. Gardenbug Multiple, biggest degenerative joint disease, traumatic brain injury Minnesota Needlework, gardening, grandchildren, computers, biking Working for disability rights. [email protected]
I am currently in transition as I try to go onto SSDI.  I have worked with people with disabilities in some capacity for over 25 years.  I am at a point where I must look at the wear and tear that is occurring with my own body, thus I am now looking at going on disability.  I am hoping that the new free time will allow me more time with my family and friends, something that has been at a very low level while trying to work.
I am active in the local bicycling community as a United States Cycling Federation official.  I am still able to ride my bike, though not as far as I would like, which keeps me active without wear and tear on my joints. 
I have 2 wonderful children, and we are expecting my second grandchild any day now. 
5/31/2001 
View the details of this row. MSN NicknameGoku4048 devolobmental learning disability sparks sci fi to have fun [email protected]
10/27/2002 
View the details of this row. MSN NicknameGoodOld_Uncle_Bill1952 Cerebral Palsy Vancouver,B.C. CANADA Karaoke & Managing Communitys   [email protected]
3/26/2003 
View the details of this row. MSN NicknameGoodOld_Uncle_Bill1952 Cerebral Palsy VANCOUVER,B.C CANADA KARAOKE SINGING TO GET MORE MEMBERS FOR COMMUNITYS [email protected]
 
3/26/2003 
View the details of this row. GoodTimeMan Osteogenessis Imperfecta Sanford, FL. Camping/darts/fishing/walking To find nice lady and let my feeling out [email protected]
I had over 387 fractures on my body/ 2 knees replacement /
3 hips replacement / 1 shoulder replacement /  1 ear bone
replacement /  1 bone taken out of the right shoulder and rebuilt
 
My wife past away on the 7-22-2001. She had the same bone condition I have.    Iam looking for a nice lady who is or not in a
a wheelchair. My home is set up for a handicap person in FL.
 
                                                                               
                                                                                                                                
1/5/2002 
View the details of this row. greenkat back injury with nerve damage to legs, right side is worse Nevada travel, leatherwork, reading and most crafts I am trying to figure out what my limitations mean as to how they will change my life and how to keep this from happening. [email protected]
I am fairly new at living my life with limitations and haven't figured out what this all means to me. Everyhing wasimportant is missing in my life.  I lost my independence when I was told I couldn't drive unless I have modifacation made to my car.  I haven't been able to get this done so still stranded.  I was a truck driver before this and spent my time exploring the country.  Now I can't get to the store. I don't have my job anymore either. I was told that I can't go back.  I look at job ads and don't know what I can do.
If anyone can help me figure out how to get through this and win I would like to here from you. I have so many feelings about this that I don't understand. The doctors said this was as good as it will get and discharged me.  I just don't know how to life with with what I have to deal with.
1/22/2002 
View the details of this row. MSN Nicknamegreg1065354 Spastic Cerebral Palsy Lincoln, Nebraska Reading, Listening to the radio, Visiting communities To overcome my technological challenges. [email protected] My name is Gregory A. Stewart and I have found numerous disability communities (some CP related) and I have joined numerous communities. 2/16/2002 
View the details of this row. hitracelyn28 Osteopathia Striata w/cranial scelrosis,tracheostomy & hearing aids Georgia meeting others within the special needs community hoping to return to work next year once my little girl goes to preK [email protected]
Hey, I'm Tracey married to a wonderful man by the name of Brian and we have a precious 3 year old daughter named Shelby Lynn. We reside in Waynesboro,GA. My days are filled with joyous moments spent with Shelby. My husband and little girl are my life. I am a devoted Christian, wife, mother, & volunteer for the Center for New Beginnings- www.nbeginnings.org (our local non-profit Christian Center for the Special Needs) and also volunteer 1 morning a week at our Church's BiblePlaySchool Program. At the Center, I serve as the Parent Support Coordinator providing resourceful information to other parents as well as hosting monthly Parent Support Group meetings where we as parents can come together to get away from life's everyday struggles as being parents of special needs children for just a brief moment.

Little More about Me........

 My daughter and I both have a trach. We both have a rare syndrome, Osteopathia Striata with Cranial Scelrosis. This syndrome has several different names and variations. Abnormalities include: severe obstructive sleep apnea (which causes us to be tracheostomy dependent), very small nasal cavity/passages, hearing impairment, cleft palate, GI issues, very large bones (facial structure issues), dental issues, developmentally delayed,etc. Life span is normal there is no cure, and only a handful of people worldwide with it. I have had my trach for about 25 yrs and have done well if I have to say so myself. Shelby received her trach in 2006, she continues to thrive each day. I look forward to meeting others with similar backgrounds and hope to shed a little bit of hope and inspiration to others. I have posted our story in journal section  to share a little hope,inspiration and know that God is Good All the Time. Please visit Shelby's page for current family updates: www.carepages.com page id: babyshelby

8/16/2008 
View the details of this row. hitracelyn28 Osteopathia Striata Georgia meeting others within the special needs community to return to work full time next year once my little girl enters preK [email protected]
Hey, I'm Tracey married to a wonderful man by the name of Brian and we have a precious 3 year old daughter named Shelby Lynn. We reside in Waynesboro,GA. My days are filled with joyous moments spent with Shelby. My husband and little girl are my life. I am a devoted Christian, wife, mother,volunteer for the Center for New Beginnings- www.nbeginnings.org (our local non-profit Christian Center for the Special Needs) and also volunteer 1 morning a week at our Church's BiblePlaySchool Program. At the Center, I serve as the Parent Support Coordinator providing resourceful information to other parents as well as hosting monthly Parent Support Group meetings where we as parents can come together to get away from life's everyday struggles as being parents of special needs children for just a brief moment.

Little More about Me........

 My daughter and I both have a trach. We both have a rare syndrome, Osteopathia Striata with Cranial Scelrosis. This syndrome has several different names and variations. Abnormalities include: severe obstructive sleep apnea (which causes us to be tracheostomy dependent), very small nasal cavity/passages, hearing impairment, cleft palate, GI issues, very large bones (facial structure issues), dental issues, developmentally delayed,etc. Life span is normal there is no cure, and only a handful of people worldwide with it. I have had my trach for about 25 yrs and have done well if I have to say so myself. Shelby received her trach in 2006, she continues to thrive each day. I look forward to meeting others with similar backgrounds and hope to shed a little bit of hope and inspiration to others.  Please visit Shelby's page for current family updates: www.carepages.com page id: babyshelby

8/16/2008 
View the details of this row. hotrod2k Cerebral Palsy Miami, FL   Be independent [email protected]
7/10/2001 
View the details of this row. HotWheels21 Cerebral Palsy Jonesboro, GA reading nything interesting, rock, country&christian music, etc   [email protected]
1/12/2003 
View the details of this row. MSN NicknameHotWheels2282 CP GA Reading, writing, music (country, rock, gospel)   [email protected]
I love meeting new people, making new friends, and I hope to do so through this chat.  May GodBless you all!
 
Heather
8/14/2003 
View the details of this row. MSN NicknameIDEPENDENT40 CP,DIABETES,COUGH INDUCED ASTHMA, WEIGHT PROBLEM PROVIDENCE, RHODE ISLAND LEARNING MORE HANDS ON COMPUTOR,READING AND AUDIO BOOKS, WRITING, TWO DOGS, TWO NEPHEWS LOSING WT MEDICAL NECESSITE [email protected]/[email protected]
10/28/2001 
View the details of this row. Iluminia impaired funtioning           3/2/2003 
View the details of this row. MSN Nicknameincheck728 TBI sevicor(hemi-peligic)L.side western mass mucic,cooking,football, going to school, living life, [email protected]
 
11/5/2007 
View the details of this row. MSN Nicknameincheck728 stroke survor western mass. football,music,cooking,chatting, comedy,much more..... walk with out my brace on. ncheck728 @hotmail.com
hello, Iam Suzane  Iam a stroke survor, mother of one child whom was 3 when i had my CVA.I tought him how to ride his bicycle from a wheel chair, played baseball , i did the mom role on wheels. I was lucky to survive it all but still found it my duty to due my part in raising a child.never give up hope.!suzane~
11/10/2007 
View the details of this row. MSN NicknameitouchUeverywherealways Dystonia Spasmodic Torticollis Spokane,Washington Swimming,puter,cards,games,music,movies retired.Have worked 4 Years,Navy,Army Medic.Looked strange but did good work.S.T. since 60-61.Beinging happy,seek Gal to spoil,friends,to love [email protected] New,shy,chronic pain.Male seek friends,e-mail,more.Will make you laugh.Webtv,only can MSN Messenger.Hi,thanks Ron 1/4/2002 
View the details of this row. Jackie Stroke, work related back problem Missouri loving my husband and daughter to be there for my daughter when she goes to collage and gets married [email protected]
I suffered a minor stroke from a ruptured brain aneurysm I still have 2 left that at this point nothing can be done with them I hurt my back at work which caused 2 buldging disks @L1, L4 I love to chat and get letters. aneurysms run in my family Dad had 3 and stroked right after surgery I took care of him for 11 years till his death 5 years ago he was bed ridden my sister died 14 years ago for a ruptured brain aneurysm and my dads brother died the same year from the same thing
8/9/2001 
View the details of this row. MSN NicknameJanelen2 lupus/fibromyalgia/rheumatoid arthritis Homestead, FL internet groups, cross stitching, homemaking be the best person I can be take excellent care of my family [email protected]
Hi!
Janie here!  I am the wife to Paul of thirteen years and I have four sons.  My two oldest have adhd and autism.  Iam also living a life with limitations.  I need to keep my stress levels low to prevent lupus flare ups.  It is going to be wonderful to meet you all!
11/10/2002 
View the details of this row. MSN Nicknamejhighfield21943 Multiple Sclerosis Canada My computer next to my 5 grand-children Keep on moving as long as possible jhighfield2hotmail.com
MY NAME IS JOANN NOT "PDF" AS YOU READ. IT WAS A PET NAME NY SON GAVE ME WHEN HE WAS VERY YOUNG. HE PASSED AWAY FROM CANCER LAST YEAR IN THE FALL BUT NOW I CAN'T ERASE IT FROM MSN. JUST WANTED TO SAY HI AND WISH YOU ALL A VERY MERRY CHRISTMAS AND ALL THE BEST FOR THE COMMING YEAR. HOPE TO MEET SOME OF YOU THEN
                                  BEST WISHES
                                           JOANN
12/21/2005 
View the details of this row. joilee T-12 paraplegic Oklahoma books,movies,chatting   [email protected]
Would like to chat with others who no what its like to go through lifedisabled.
9/1/2001 
View the details of this row. jonny cp degenerative disc disease in neck Kingston Ontario Canada reading old movies writing disability issues expanding work in disability issues [email protected]

I want to expand my involvement in disability issues now that i'm retired due to disability and chronic pain. i may want to pick your brains,so be warned.

Also looking for new friends and to meet that special someone hopefully.

i have two great teenaged kids.

3/25/2003 
View the details of this row. MSN NicknameKalaya76 deafness, slightly brain damaged British Columbia, Canada writings go to college to start a career [email protected]
I'm not the one to talk about me being brain damaged. It happened when I was born so it's extra harder on me to even think. I'm just saying thatbecause of experiences I have gone through, I would like to help. In other words, I'm there for you no matter what.
12/14/2004 
View the details of this row. karenlynn diabetes,htfailure,renalfailure,depression Anchorage, Alaska Chevron cars,learning internet, care for tbi daughter Just surviving day to day right now [email protected]
I have been having a really hard time coping the past month or so.  I would love to go somewhere in the South Pacific.  I have had no vacation since 6-'92 when my daughter was shot through the face by her fiance'.  She was never suppose to wake up but she surprised everyone.  We have no family support up here in Alaska.  I got my asso. of arts about a month before she was shot.  Tell me about your selves--PLEASE.
8/14/2001 
View the details of this row. Kate CP Atlanta, Georgia Disability Rights, Reading, Writing, Listening to Music Creating a thriviing consulting business [email protected]
6/3/2003 
View the details of this row. Kathy B CP & Incontinence San Diego County, CA My husband & daughter, the pc, reading & disability issues Doing More For Myself [email protected]
I look forward to meeting you. I have a site here as well:  http://msn.communities.com/CerebralPalsyNetworkLifeWithCP
 
Kathy
9/9/2001 
View the details of this row. Katie CFIDS, Fibromyalgia, Osteoarthritis, Osteoporosis, "old woman's disease" LOL South Dakota but looking to move! Once upon a time: Law, politics, social issues. More recent past: Flower garden, crafts, sewing, puzzles of all kinds. Now: Don't know, still looking to see what I can do in spite of increased pain and decreased mobility... Grieve the most recent losses due to further decline in health so I can get on with life! And, in the process, I really hope I can help somebody else, too :) [email protected]
So glad to be included here.  It's been a VERY long, painful life, but I'm still here and still willing to make the best life I can.  I managed to give up career, family, friends, financial security when hit with CFIDS, and survived by finding other things that brought a sense of accomplishment and joy.  Over the years the arthritis and "other ills" have slowly erroded away even that.  Most recently, the Fibro (combined with the OA in all major joints) has rendered me nearly house-bound.  I don't like it, and I'm having a hard time accepting this on top of the others, ya know??  Add to that a miserable personal relationship (we "own" a house together... long story) and life just ain't pretty right now.  I really hope to gather information I can use for decision making.... but I also want to support, love, and encourage others.  I've had a few wonderful "cyber-friends" that have held me up over the last few years... and I want to pass it on.
5/27/2002 
View the details of this row. KENINJAX amputee(left foot) breastbone seperation from open heart surgery for birth defect , diabetic, in wheelchair Jacksonville,Fl. very mechanically inclined, gardening,home remodeling,auto repair, theme parks,country craft festivals,sight seeing to remain as independant and mobile as possible, meet a LOCAL female , tired of the long distance romance /email /chat [email protected]
Would like to meet a lady within a normal driving distance,for posible long term relationship.
6/14/2004 
View the details of this row. KolaKid mild cp lewisville, texas... 20 min. north of big d. family, food, oldies music, travel, sports, FOOD! grow my small biz , learn, travel, eat [email protected]
single guy, 30, wanna make new friends... especially around dfw... chat w/anyone though.  have a great day!  ~Larry
6/1/2003 
View the details of this row. MSN Nicknamekyprincecharming Muscular Dystrophy Louisville, KY ask me ask me [email protected]
4/15/2003 
View the details of this row. MSN NicknameLADYLUCK_317 SPASTIC CP. IN LEGS MASS SPENDING TIME WITH FAMILY,FRIENDS,MUSIC,COOKING,MY PLANTS,MEETING NEW PEOPLE, MY COMPUTER. TO STAY STRONG PHYSICALY & MENTALY. [email protected]
9/16/2002 
View the details of this row. MSN NicknameLakeozarkman1 rheumatoid arthritis missouri working on computers   [email protected]
Hello to everyone,
My name is keith, i was in the restaurant biz as management for over 25 yrs, now im disabled since 2000.
I try to help others out that is disabled or whatever they may need help with.
I make friends online since i dont get out much at all.  hope to be of assistance to you all.
thank you
 Need to know more about me just ask.
7/15/2007 
View the details of this row. LisaT1 brain tumor nebraska i like computers, travel i want to do more to help others [email protected] 2/22/2001 
View the details of this row. Lizzie Polio. respiratory failure upstate NY computer,crafts,cooking,movies,& making new friends staying healthy [email protected]
                  I really enjoy learning new things and meeting new peoples.  I found out I can do that by joinning the groups.I have learned alot and met alot of interesting people here,we seem to have alot in common. Which is real nice.
                                                                              Lizzie
7/21/2002 
View the details of this row. MSN NicknameLovrly1 I have heart and resperatory failer diebeties and high blood pressure under 24hr. care for life oklahoma i like crafts, pets, children,moves and online shopping ect. to live longer and happier thand expected to [email protected] im 37 and live with my parents caring for my needs.24hrs. a day im looking to have outside contact with people and make some friends .so hi nice to meet you. hope to hear from you soon 1/27/2006 
View the details of this row. MSN Nicknameluckycramer pps,arthritis spine,fm ia outdoors,fishing,horses,book n/f history, people when they say you can't, i say the hell i can't and do it (sometimes) [email protected] i love life and this w/c isn't going to stop me from living it 9/25/2003