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TRIGGERPAGE : I hate this illness
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Reply
 Message 1 of 13 in Discussion 
From: MSN NicknameKasa721  (Original Message)Sent: 10/4/2007 2:17 AM
Trigger warning ------------------------Trigger warning------------------------------------------
 
unkind words about people in my life, if ya know them, keep it to yourself, please!
 
Trigger warning -----------------------------Trigger warning-------------------------------------
 
bad words------------------------------------------------------------
 
 
 
I am so non-violent, but this has made me come as close as I have in the last 8 years!!
 
-----------------------------------------------------------------------------------------------------
 
 

I am so tired of being in a manic phase. I have been in one since July, I think. We got flooded out of our apartment in the beginning of June, and I went into a depressed mode, really depressed, barely functional. We moved into a new apartment on July 4th, and I was moving everything after the money ran out and we couldn't pay the movers to help move it into the new apt. anymore. I am 56, and on disability for MPD, and other mental/physical illnesses. I moved all that was left in the truck into the apt or storage area by myself. Yes, it was heavy, and a lot. No, roomie refused to help, she was too sick to help. My asthma and illness didn't matter. Yes, I am resentful yet to this day. I am not a nice person.

In this move, and the days afterward, all my winter clothes were either lost- I remember moving the containers into storage- or stolen as the storage room did not lock. I have no winter clothes, and we had snow 2 days ago where I live. It is chilly outside now. No one but me and my bishop is concerned.

All of July is a blur, with me going into the hospital for 12 days at the end of July, getting out on the last day of July. August is somewhat of a blur, as I was manic and didn't know it, hmm also July and didn't know it. Toward the middle of Sept my pdoc decided I might be manic - I have questioned this for years, and my sister is bipolar, as was my uncle. So he put me on serequel for the manic part, and cut my antidepressant in half. Now I have been snowed on antidepressants and antianxiety agents for over 12 years, because I was so lethally suicidal. Now I have emotions raging through me like freight trains, and today it feels like the manic part is slowing down. I have to say I am scared of the downslide that follows. I have been told it is equal to the intensity of the manic that preceedes it. This is extremely scarey, cause the manic was outside anything I never want to experience again in my life! It almost drove me to self harm/suicide on a couple of occasions.

My roomie has not been too understanding of the manic stuff. She agitates it without thinking or caring. I have had to increase the seroquel simply to not argue with her! It got so bad here 3 nites ago, that my pdoc's oncall told me I could increase it by like 1200mgs if needed just to be able to ignore her! That is not treating an illness, that is treating an unstoppable cause!

I am irritable, super so toward my roomie. Of course the fact that she is perfect doesn't help at all. She is a good Christian, don't get me wrong. But I tire of hearing of her Christ-like tolerance of me and need for me to be responsible for myself. Like I am not trying to be more socially correct and less irritable? I find it hard to live with someone who "never makes mistakes" and who agrees she doesn't and that that is what she is here on earth to do - "live the most perfect life I can so I will attain the best rewards in the afterlife that I can." I am struggling to get through the day today! IT is not easy to deal with perfection anymore! I cannot help but be irritated by someone who does not see their behavior the way I see it. The constant fault finding, the incessant nitpicking over words to the extent that the message is totally misconstrued in the process - meaning the message that was sent is totally different from the intended one, and because of that, I have lied major league in the process of this mess! I don't always pick the best words, I agree. But I am riding herd on my mouth trying to do my best to express myself as carefully as I can, amidst the manic mouth urges, and my mind going forward at hyperspace speed!  Add to that that I am paranoid and have persecutory delusions, in her words. 

I am taking enough medication to slow me down that my swallow reflex is depressed at night and my lungs dry out at night when I breathe (also partially due to a cpap machine that I need to breathe continuously when I sleep). I am gaining weight from this medication, and that adds to the breathing difficulty, as it pushes up into my chest cavity. My self esteem, already low, has plunged from gaining all this weight so fast(another thanks to having gained half of it from the appetite enhancement of steroids taken because I am allergic to the kittens she is fostering-something neither of us anticipated). I am unable to walk more than half a block anymore without gasping for air--this after getting to the point where I could walk 3 miles in 45 minutes!!.  I feel like just giving up and saying the heck with it, end it all now. But I have family who cares about me.

The roomie situation will end soon, as she will be moving out.  It is just enduring the current situation that is next to impossible right now! Even a week seems an eternity, and it is longer than that. Heaven forbid they already rented the apt she wants to someone else, and she has nowhere to go!! Those could be the grains of sand that engulf me totally. I don't think I could take it!

This is the first I have written here about this whole situation, and I am certainly hoping it stays here. I don't know if anyone here knows her or not, but if word of anything I have said reaches her, there will be hell to pay in this apartment. I gave up another group where we both belonged so that she could have a place for support. But I need support, too.  My kid and other family are in another state many miles away, and I cannot afford to call them all the time. I am paying all the bills so that my roomie can get the deposit money together, and pay for movers. I am paying for the truck. I wish her well, I really do!   I just want to be alone, on my own, without having to worry about hurting someone all the time. I know I hurt her feelings, but I have limited brakes on my mouth. And when I isolate myself to avoid saying or doing anything that might hurt her, then I am being ugly to her! I cannot win no matter how I play my cards. I am always hurting her in some way. I don't want to, don't set out to, but always end up doing so! She needs to be away from me as much as I need to be away from her.

Thanks for letting me vent.  Comments welcome.  I do need reality checks.

Kasa



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Reply
 Message 2 of 13 in Discussion 
From: MSN NicknameKasa721Sent: 10/5/2007 6:05 AM
 
Things go from bad to worse here.  There is a constant battle for us to keep control over ourselves, and not let the roomie dictate everything we do or think or say.  It is not a decent way to live.  When we keep our control and exercise it over ourselves, she becomes terrifyingly hostile.  She is capable of physically harming us and has in the past.  We are trying to do things for her that we feel are fair, and helpful, but not to the point of being her slave.  I draw the line.   And she hates that line.  She lost out on the apt. she wanted and is being hostile toward me for it.  I didn't do anything but drive her there.  So now it looks like she will be here till the end of December.  Oy vey!  I will not bail her out this time.  She has till then with her housing voucher and 2 extensions, and I will not share a place with her anymore, no matter what.  She has her housing, and that was as long as I said I would do it --till she got her housing.  I am standing firm on this.  I can't take anymore of this.  I am fighting urges to destruct everyday as it is, so there is no way I can keep on rooming with her after this lease expires.  Please keep this here, and not in any other communities.
 
Kasa

Reply
 Message 3 of 13 in Discussion 
From: TirelessNetzerSent: 10/8/2007 2:07 AM
I'm sorry to hear you are having such a hard time.  It is really hard to live in constant conflict especially in our circumstances.  I've been in similar situations and I feel for ya.  Hope every thing turns out okay and you can hang in there.  By the way, you are
not a bad person because you want a peaceful home. Take care.
Netzer

Reply
 Message 4 of 13 in Discussion 
From: JimJimSent: 10/15/2007 9:38 AM
 

Reply
 Message 5 of 13 in Discussion 
From: MSN NicknameTheButterflyJaniceSent: 10/16/2007 12:24 AM
((((Kasa)))) THis is an awful sisuation to be in hun. My heart reaches out to you. It's not good for us to hold al of our feelings in as they will exployed in some way that will hurt others. ANd you sure don't want that. You need to get them out somewhere and I'm glad and hope geting them out here helps some. I also hope you feel safe here, everyone is to keep things here, and I sure hope they do. You sound like a very loveing careing, kind person, that has been takin advantage of. I don't blame you in the least, the best thing you can do is to get out, as asap. I wish you the very best hun. I wish I could help you more but sounds like you have it under controll by what you are going to do. When are you moving out? You have to take care of yourself if you don't look out for number one (yourself) no one will do it for you, especail your room mate from the sounds of it, or even help to support you in the least. Keep us posted.
Love & Hugs!
Butterfly~Jaince

Reply
 Message 6 of 13 in Discussion 
From: MSN NicknameKasa721Sent: 10/16/2007 4:57 AM
Time for an update.   She has not looked for any new places-she would need me to drive her.  She has looked in the little magazine, but has not asked me to take her to any.  She asked me if I was going to be here in this area for the next year, and I told her I honestly didn't know, that I might just move back east to where my kid lives after about 6 months or so.  She said, well then I won't move out of town because of not having transportation.  That was good thinking on her part, because bus service outside of this main town we are in sucks.  I am glad she is planning ahead.  I have got appts this week out the kazoo, and she has some too, that I promised to take her to, so I don't know if she is going to look at any places. 
 
I see my pdoc tomorrow.  He is gonna take me off or seriously reduce this medicine that makes it hard for me to breathe and swallow.  He has to, because I have to lose the weight also, my medical doc flipped last week at the 20 lb weight gain in a month!  She is really concerned.  I went for spirometery testing this morning-lung functioning- but won't find out the results till the end of the week if I am lucky.  He said he didn't see a whole lot of difference with the rescue medicine added, so I have no idea what we will do to help me breathe better.  I cannot walk more than 2 blocks without getting winded.  I am so upset by this.  I had done so well!!  It is so unfair!  I have to go to my bishop this coming Sunday and see if I can get a voucher for winter clothes.  I have one pair of long pants, and 5 shirts, and no socks, one skirt, and three sweaters.  No everyday pants, no sweatshirts, no warm stuff.  It is in the 50's and 60's here, with winds all the time.  I live in the mountains.  All the rest of my winter clothes were lost when I moved in the summer - in the beginning of this first real manic episode.  All of them!  I had a vast winter wardrobe.  All gone.  I am devastated.  And cold.  Got to make do until after next weekend.
 
I am coming down off the manic phase.  It is taking less of the Seroquel to keep me calm.  This is what he has to cut back.  I am more easily moved to tears.  I am taking this one day at a time.  I am feeling physically sick, so I am not able to do as much, but am pushing to get stuff done, anyway.  Roommate is annoying by making comments that I should get this and/or that done also.  I don't need her help, dang it.
 
I feel so unsure of where I am going, emotions wise.  Waiting to see how the down side goes is like waiting for the other shoe to drop.  Have had lots of experience with that, and it's no picnic.
 
Thank you for your posts, they have helped a lot.
 
Kasa 

Reply
 Message 7 of 13 in Discussion 
From: MSN NicknameTheButterflyJaniceSent: 10/16/2007 9:01 PM
((((Kasa)))) My heart goes out to you also hun. YOur life is in such a disaray right now. I'm glad you are seeing you today and hope it allworks out ok for you. YOu wil have to post and let me know how it went. 20 lbs in a week???? WOW!!! I would be very concerend also. Glad to hear you are coming down off hte manic, keep us posted as how you are doing with that. As I told merkelsgirl today, this is what I do to help me make it through the rough times.
 
One of the thing I do is I live by one day, one hour, one min, or one sec at a time, what ever way I have to take it to make it through the day. The other is I live by the saying I have on the "words to live by" page on the side page, the serenity prayer. You can use it even if you don't belive in god, just omit that word if you wish. These two things are my moto's that I live by and has helped me so many many times.
 
If your not able to do something and your roommate wants it done, let her do it herself. I hope you will be able to moving back west with your children, and soon before the next 6 months, that would be so good for you. I wish you the very best about getting some winter clothes as it's right around the corner and you need them. in fact I know you need some right now. Keep us posted hun.
Love & Hugs!
Butterfly~Janice  
 

Reply
 Message 8 of 13 in Discussion 
From: JimJimSent: 10/19/2007 7:59 AM
 
!cid 1292090264000000@web50801 mail yahoo

 

 

 

Reply
 Message 9 of 13 in Discussion 
From: MSN NicknameKasa721Sent: 10/22/2007 6:24 AM

I am feeling less anxious and aggitated than before, which is strange because the doctor stopped the Seroquel, and started me on Geodon. The swallowing difficulty is gone, as is the itching that I started getting the day before my last post. The Geodon is on trial basis, hopefully it helps keep my calm. I don't want to have to go back on Ativan, but if the Geodon keeps me from communicating with the others inside-I have multiple personality disorder- then it will have to stop and then I am not sure what I will be taking to keep me calm. The manic phase is on the downswing, as I have less trouble with foot-in-mouth disease, lol, and losing my temper on a second's notice. I am also less energetic, but not to the terrible depressed state. I hope it doesn't get to that. It feels good to have a little energy. I have to move to a new apartment in December, and I could sure use the energy! After being on the Geodon for 2 weeks, I am supposed to increase my Topamax to 75mgs each am until I see him at the end of one month from last visit. I was supposed to taper off the Seroquel, but the itching was so bad I couldn't sit still or stand it, so I cut it from 150mgs to nothing. I haven't had any problems so far. If I do, I will call him right away. I think the Geodon is doing fairly well, I been taking it for a week now, and he started it at 80mgs, so it is a healthy dose. At this point in time, bipolar looks manageable. But I know it can rear it's ugly head anytime, too. I am trying to remember what happened when it started to flare. That is hard for me, cause it is all such a blur and confusing. I will post what I remember, so I at least have it written somewhere. Then I will print it out for my pdoc and therapist. If I do that, they will have it too, so that will be a help. The only problem is Geodon doesn't make me tired to sleep. He said I can take Ativan for that if I need to. Thank you all for all your support and advice. It has helped knowing that people know, understand and care. Without you all I would have gone overboard and needed the hospital, or worse.


Reply
 Message 10 of 13 in Discussion 
From: MSN NicknameKasa721Sent: 10/24/2007 12:30 AM
Once again the wicked witch of the salt flats has reared her ugly head, and now my internet is cut off for the next 5 days, all because I got confused about what we were talking about and therefore "lied" to her!  I wish. No I don't want anything bad to happen to her, but I wish she could spend a few months in my shoes!!! I am at the library trying to type on these tiney spaced keyboards!  I am finally on the downswing for sure, spent 40 minutes in my therapists office crying today, and fighting it like heck here and she has to be the biggest **tch in the world today, just because she is still pissed at her therapist from yesterday, and at the doc from today for not doing something major like taking out her tonsils.  I am not them and I have no control over that stuff, but I don't have to bear her pissed of stuff for them just because i screwed someting up, do I???   It is totally so unfair.  I actually made sure she got to the apt place adn got the apt.  Now next I am supposted to pay for the truck to move her sorry butt.  I will, simply to make my life better.  She moves into the new place on 11/7!!!!!!!!!!!HOORAY!!!!!!!!!   I can't wait.  She has to pay the guys to move her stuff, not me.  I am not made of money.  All I want to do is lay on my bed and cry.  big hot tears of frustration and rejection that is constant from her.  I think I am not going to coook for the next 5 days.  let her fumble in the kitchen.  I dont' feel like being the bigger person, being nice to her no matter how nasty she is to me.  I am tired of being good even when I get only bad in return.  She can be nice and is at times, but she sure looks for times to be mean to me.  I am tired of being her doormat.  Then she gets upset when she hears I want to move back east in a year, I am abandoning her, the only person who cares about me, my family didn't come here when I ggot deathly ill, did they?,  no no one knew, didn't have the right phone numbers for them, they had changed.  So my family back east doesn't care about me.  wrong.  They just couldn't be reached.  Things happen.  I wasn't the greatest in keeping up tabs with them before i got sick.  For all she rides my butt for every single mistake I make, she must know every hair on the back of my head!!!  I am so pissed!  Anyway, I will write more tomorrow, as I am time constricted by the library.
 
Kasa

Reply
 Message 11 of 13 in Discussion 
From: MSN NicknameKasa721Sent: 10/26/2007 1:38 AM
IT IS SO MUCH WORSE
 
 
All my contacts that give me support are online.  Well the bottom has dropped out.  Angelia knows, cause I called her-only one on my calling plan I can call for free.  T-mobile sucks so bad!!  I am figuratively dying from lack of contacts. 

I am mpd as well, and all of us are so lonely for friendly words. The roommate wants to be our lifeline, but when she is so critical of all we do, even criticizes our efforts toward God, it is really like living in *ell.  All I do is cry and think of dying.

Please pray for us. we need it bad.  we are suicidal.  All we got is online to talk to you all and family cause our phone plan is too expensive.  Please please pray.  We will post as often as we can.  I know it sounds dramatic, but our shrink is worried and so is our T.  We usually don't worry them much.  This roommate wants to be our whole world, but she is the wrong kind of world..  We will go into a hospital before we hurt ourselves, but we have no idea how to pay for it afterward.

love to you all,

Kasa


Reply
 Message 12 of 13 in Discussion 
From: MSN NicknameTheButterflyJaniceSent: 10/26/2007 2:14 AM
((((Kasa)))) I am thinking and praying for you swetie. Please hang in there. And PLEASE PLEASE do check into the hospital before harming yourself. AS far as paying for it afterwards, do the payment plan hun, pay as much as you can each month, tehy can not turn you down for lack of insurance if you don't have any.  I wish there was something more I could do for you hun, but know I am here for you. Keep checking in and leting us know how you are doing.
Love & Hugs!
Butterfly~Janice

Reply
 Message 13 of 13 in Discussion 
From: MSN NicknameKasa721Sent: 11/3/2007 6:54 PM
We went inpatient for 6 days and it helped .  being in the midst of a med change didn't help at all, so they upped the meds and that got us better,  We are home now for 3 days and doing well.  Hate med changes.  Only figured out the med change part of it in the hospital. So now we have a plan for all future med changes.  They have to do them over a one week period so we don't get panic attacks like that.  Thank you for your caring and support.  I have to reload windows on my computer cause I forgot my password and then get it up and back online to post!
 
Love,
Kasa

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