MSN Home  |  My MSN  |  Hotmail
Sign in to Windows Live ID Web Search:   
go to MSNGroups 
Free Forum Hosting
 
Important Announcement Important Announcement
The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More
RSD Helpline Support Group[email protected] 
  
What's New
  
  Welcome  
  Message Boards  
  General  
  Group Rules  
  Welcome Newbies  
  Our Toolbar  
  Monthly Check In  
  NEW CHAT ROOM  
  Kid's Introduction Page  
  RSD Intro's  
  Coping With RSD  
  
  RSD-Life changes  
  FAMILY INTRODUCTIONS  
  RSD Questions  
  ADVOCACY PROJECTS  
  RSD News  
  A Laugh A Day  
    
  Pictures  
  Poems n Such  
  Healthy Recipies  
  Workman's Comp  
  RSD an Pregnancy  
  Help Wanted  
  Prayer Request  
  Caregivers  
  
  
  Tools  
 
Coping With RSD : teeth or lack of
Choose another message board
 
     
Reply
 Message 1 of 7 in Discussion 
From: MSN Nicknamestacenbill  (Original Message)Sent: 4/15/2008 1:43 PM
geesh where to start here recently my teeth have started to just discenergrate i mean just falling apart they mostly ate up from the gum working their way up. I have seen 2 dentist and 1 oral surgeon who pulled the last tooth that did this it was a molar so didnt think that much about it. So anyway the last 3 months are so i have noticed this going on in my eye teeth are almost gone i have an appointment friday to see another oral surgeon to have one or both of my eye teeth extracted then the next step is to see another specalist that specializes in mouth reconstruction since i am having problems with all of my teeth falling apart just the other day a piece of another molar fell out. I did not get my first cavity til i was 24 years old and have been a advocate in my hygiene with brushing and flossing. I was sitting here in the middle of the night tonight lol i am up again all night driving me nuts anyway we have nerve endings in our teeth could this somehow be related to my rsd? has anyone else experienced this? I have had rsd since march of 1994 but was in remission for a few years but when it came back it came with a vengence and since also having fibromalygia and osteo in my knees heck its all related in my mind anyway. I am going to ask the doctor im seeing his opinion as well as the other doctor too. But i wanted to see if any of you are having this problem or am i the lucky one to go through this one alone. By the way i am only 35 and my first cavity came after rsd lol figures huh.  I dont even leave the house unless i have to due to my teeth i am just embarressed for anyone to see me right now. Ya know when i smile i look like a jack-o-latern lmao. At least i have my sense of humor intact or wait maybe its just lack of sleep and the drugs lmao. Oh well hope all of you are well and pain less this day. I look forward to hearing from you all on this. stace


First  Previous  2-7 of 7  Next  Last 
Reply
 Message 2 of 7 in Discussion 
From: MSN Nicknamelgs131Sent: 4/16/2008 1:38 PM
Stace,
In the first year that my son had RSD, he had 3 root canals.  He did not have wonderful teeth as a child but the years before the RSD, he had only needed the regular level of maintenance and fillings on his teeth.  RSD came and suddenly we seemed to be living in the endodontist's office.  The good news is that for the last year, he has not needed any more dental work.  Linda

Reply
 Message 3 of 7 in Discussion 
From: MSN Nicknamekieferskitten1Sent: 4/17/2008 7:54 PM
I am so glad that I read this....
 
 
 You are not alone.... I brush my teeth all the time.  I will admit I'm not a regular flosser but I do, do it....
 
 and, ever since my injury and during the time I was diagnoised with rsd my teeth have gone to hell.  I have two the are rotting away. I was to a dentist and he was just outragous so I never wentback but.  since the move I'm going to find a new dentist and see what I can do.
 
does anyone else suffer from dry mouth?  I have such severe dry mouth.  and also about the loosing teeth and teeth falling apart.  the dentist told me that if youtake more then three perscroptions on a regular daily basis.  Your teeth will rot.   I'm not sure if he said that tomake me feel better or not.
 
I hate it cause with the dry mouth and the rotting teeth I feel like I always have nasty breathe, it is embarassing.
Michelle
 
sgirlmichele.jpg picture by MsSusie

Reply
 Message 4 of 7 in Discussion 
From: MSN NicknamefranknberrieSent: 4/17/2008 7:59 PM
Hi Stacenbill,
 I started haveing major problems with my teeth about three years into RSD, my Dr told me as well as a dental specialist that the medications I am on because of the RSD is causing my gums to dry out causing my teeth at the gum lime to need constant repair. I already had several rear crowns and the problem is the teeth under the crown at the gum lime are also degenerating causing the crowns to have to be destroyed and removed to attempt to repair the damage,then another new crown. Right now the Dentist says I need 9 crowns and possibly some of those are going to need root canals...almost 20 thousand dollars worth of work! I dont know what to do living on a meager SSD income with no dental insurance, I have already had a couple just removed rather than to spend $1500 each to fix...Im considering having them all pulled...but with RSD I have no clue what that is going to entail, Im just sick not knowing what to do, My front teeth are fine, its just every tooth in the back is crumbling since having RSD.....anybody have any ideas?
Franknberrie

Reply
 Message 5 of 7 in Discussion 
From: MSN Nickname11robinwaySent: 4/21/2008 3:41 AM
I, too, have had problems with my teeth. I read your post and it sounded like me. It seemed like every week I was seeing the dentist. I had cavities and broken teeth regularly. So I was getting teeth pulled, filled root canals, etc. The dentist said it was all the meds I was taking that were drying out my mouth. I have followed his advice and things have improved a lot. He said to chew sugarless gum, drink more-water-a lot, use prescription toothpaste in the pm, use a flouride rinse in the am (ACT) and brush with biotene (toothpaste for dry mouth). What a difference! I actually have had the last 2 visits with no cavities. Maybe if you tried some of these things it will help like it did for me. Good luck.

Reply
 Message 6 of 7 in Discussion 
From: MSN Nicknameannie570111Sent: 4/28/2008 2:04 PM

Hi there,,,,, The dentist did not build you a  bite plate??  A plate that fits over the teeth... With set plate in too keep from grinding teeth at nite... any time that jaw sets down,,,,, grinds,,, or just plain set down... puts jaw inline n teeth in line. Mine grinding keeps breaking it n dentist keeps remaking.  Then the fall,,,, breaking teeth,,,, N pain issues  kept me from going back to dentist. Now Have a tooth in back one that finished cracking n breaking off that is swollen,,, broke up bleeding yesterday n wwowww swelling went down n so did pain levels.. But being stuck with out phone not able too find dentist here.  Will get it all set into place when phone restored n and am moved also. huggzzzz n more huggzzzz,,,,,,,  but dentists building that plate really really really helps alot... annie


Reply
 Message 7 of 7 in Discussion 
From: MSN NicknameDoobiedoright1Sent: 7/26/2008 7:33 PM
Your not alone!
Gets harder and harder to eat!

First  Previous  2-7 of 7  Next  Last 
Return to Coping With RSD