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| | From:  mommazshine2 (Original Message) | Sent: 3/17/2005 10:30 PM |
Hello Everyone, I am very frustrated with the general public. I am 28 years of age and when I go into a public facility that I must walk for over 5 min or so, I have to ride a scooter because of the pain and lack of stamina. People look at me like I am a freak or something. Some people even come up and say rude coments to me... "you are too young to be in this." Well you are to old to be taught new tricks like manners... GGRRRR. People make me mad... or should I say IGNORANCE makes me furious. How can we educate people about this disease? This isn't our fault. We didn't ask to be inflicted with this. Would we like to have our lives back? NO QUESTION ABOUT IT!!! I believe the national colors for RSD are purple for disability and gold for the RSD. If I am wrong, please someone let me know. Wearing these ribbons could be one of many ways we can educate the unknowing public. When someone ask what the ribbons represent, this opens a door for explaining this horriable disease. I haven't came up with any other educational oprotunities aside from the ribbons, but I would love to add education to those "rude" individuals out there... Mommazsunshine2 |
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{{{{{{{{{{{{{{ MOMMA }}}}}}}}}}} that would be a great idea. Really I do understand your frustration ,,, as I have also the same reactions ,,, but for different reasons.. My disability is not really seen till I am standing or getting up from the scooter,, or chair,, whatever.. Then people look away like they are ashamed too have saw me.. I even had the problem that husband was ashamed to be seen with me.. At least I do not have that one to deal with anymore.. Sure will isolate a person with these kind of reactions.. REALLY!!!!! There is a forum,, on another site,, that is an awareness group that may have more ideas ,,,, n welcome your ideas there also... if interested let me know [email protected] talks soon thanks dear one..  annie |
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