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RSD Intro's : Michelle from White Haven , Pa . Here's my story and it still goes on everyday
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 Message 1 of 11 in Discussion 
From: MSN Nicknamekieferskitten1  (Original Message)Sent: 4/24/2008 4:18 PM

First of all, I wanted to say hello. My name is Michelle.  I'm a 35 year old Mother of two, My son is 13 and my daughter is 11.  Their father was an abusive jerk.  So, on May 10th of 2003 a light clicked on and I finally stood up to him.  I didn't care.  I was leaving even if it killed me but, we were finally free so I ended up at home with my parents in the same bedroom I was in when I grew up all 3 of us crammed in there.  I needed a job so I took a job with my sisters working in a warehouse at this point I didn't care I need to be able to support us and I had to leave the job I was at.  It was a job that I loved.  Forward to this past Novemember 23, 2007.  I had been Dating the man of my dreams a man whose been with me thru the thick and thin of everything.  Now about the RSD it wasnt until I was  diagnosed with RSD in September of 2006 .  That I finally realized the pain was real and that I wasn't crazy.  Cause I don't know about you but.  I really did begin to think that I was going crazy.

I'm upset, angry and truly frustrated and just besides myself. Lets see Where did it start? It was five  years ago Nov 26th to be exact. When I woke up I was a 30 year old normal mother of two. I recently left an abusive husband after nine years of his torture. (That's not important here.)

I woke up got dressed left the kids with my parents, who we were living with at the time and I went to work, the kids went to school and my parents went to work. It was the day before Thanksgiving and we were pretty excited I had been dating a friend of the family and we were going with him up the mountains to spend Thanksgiving with his family.  ( As of this month we've moved up here permantly!!!)

So, I'm at work, I worked in a warehouse, not my chosen profession but, due to my recent circumstances I took the job because I need the money and the benefits being a "single mom". I'm at work,  and I'm pulling my orders well all of the products are up on racks and I'm short 5'2" mind you there are supposed to be hooks and stockers to help, pull and push merchandise down to us the puller but, needless to say that wasn't going to happen. Well I needed something( it was an 18 count box of cheddar cheese combos.  I'll never forget it)  that when the stocker, who was no where to be found, pushed down it went cock-eyed and was now stuck. So being short and needing the product that was over my head. (cause Heaven forbid you short a product on the store order, cause you could be fired!!!) I got up on the bottom shelf and I reached up to get what I needed. still having trouble freeing it I reached even further well as I did I got a very sharp almost like a cholie horse sensation in the arch of my left foot. I did get what I needed and I stepped down normally well, when I did I had this horrible pain in my left foot. Like nothing I've ever felt.

My foot also immeadiatly turned Black and Blue and started to swell up. I just thought I over extended my foot or pulled something.... no biggie. When my Supervisor finally made her way up to where I was on the 3rd floor I told her what I did but, that I thought I'd be fine. but, the end of the day I couldn't stand to have my sneaker on and once I got it off I couldn't get it back on.... so, I elevated, and iced it. the next day was Thanksgiving, and I wasn't going to be on it much.

Thanksgiving came, same story it was swollen inthe morning and as the day went on it got worse. Still thinking it was no biggie I went to bed and got up on Good Friday, We worked but it was only going to be half a day.... I figured ahh I'll be able to get thru the day. I went to work updated my supervisior on it . I told her I'd ice it and elevated it and stay off of it over the weekend and then I'd let her know how I made out on Monday morning. she told me if I still had problems she'd send me to Novacare.

No improvement as of Monday morning so, I go to work and I speak with my Supervisor and she sends me to the plant manager who calls in the "Loss control Officer" who tells me that theya re going to drug test me and if it comes back positive I'm will be terminated on the spot!!! A bit rude but, it was their policy and I wasn't doing drugs. So, of course my drug test is fine then the Plant manager calls up Novacare and they arrange for someone to take me over to Novacare.

I get there and sit for hours just to have them x-ray my foot, and tell me I'm fine it's just a strain and a sprain and I need physical Theraphy on it. Basically they gave me a bandaide kissed it and sent me on my way to Physical theraphy. I believe they're motto is something to the effect of , " We keep America working.".

So, I go to physical theraphy.... the pain was so bad that I almost would leave in tears... I would have if I was more open with my feelings but, it's not my way. The idea was I'd go to Theraphy and then go back to work and keep working I did this for three weeks and I would end up no going back to work because of the pain, or have to call out the rest of the week because of the pain.

Eventually, I said enough is enough and I flat out refused to go to theraphy..... I knew my body and I knew what they were doing wasn't right. After about three months of playing around with Novacare the doctor there decided he'd send me to a podiatrist.

I go to the podiatrist and he sends me for a bone scan.... He saw something on there that indicated there was a fracture. I was now working 16 hour days on my foot/ light duty but still working. So, he gets the results and calls my employer up in a hurry. She needs to come in here asap we need to cast her foot. My employer tells the person on the phone that they didn't know where I was, that they haven't seen me.... Wanna know the kicker? I was sitting in front of my supervisors office doing exactly what my supervisor told me to do but, she did know where I was.....Go figure.

So, I get home at now 6:00pm to find that they called and left a message and my poor dad assumed that I had already been to the office and had a cast on.... I call the podiatrist up the next morning and go get casted. The Podiatrist writes me out of work. At this point it's now around 12 weeks after I've been hurt so, I would imagine that stuff would already be heeled up. So, he has me in this cast for another 12 weeks. During this time I got myself a Laywer, and went out of work on Workman's Comp.

My Laywer sends me to yet another podiatrist who takes my cast off and has me get an MRI done.... but, this time I can't move my toes and no one can come near them. so, again its hydrocortizone shots and those mega dose pack things, none of these things work.... Meanwhile I can't sleep. I didn't sleep a wink for months at a time. Once none of these things work he sends me to yet another podiatrist, my dad did go to this guy and so did an aunt of mine so I didn't think anything of it.

For over a year I treated with him with no improvements at all... I got worse. Finally I was fed up with his shots and his hydrocortizone shots and all the weight that I'd gained 80lbs to be exact. I'd become a shell of the person I once was. He was at his wits end as so was I. He mentioned he'd thought it was whats called Tarsel Tunnel, kind of like Carpel tunnel in your hands this was in my foot. He ordered and EMG and that came back positve by, this time I thought I was nuts.

So, it reveals that I have Tarsel Tunnel but, he doesn't do the surgery his associated does. So on Jan 28, 2005 I got a Tarsel Tunnel release. While he was in there he noticed that my one vein was swelled up to 4x's normal size so he drained that as well.... ( Gross I know, sorry) That in itself send up a red flag why is it what way?

then it's 3 months of recovery with not being able to put any pressure on my foot at all ( I hate crutches!!!!!) finally I go into aqua and land theraphy.... My Theraphist there says he thinks I'm showing signs of RSD.... My next appointment I mention it to my DR. He tells me all Theraphist think they are doctors and brushes it off. I go to Therphay and play around with my doctor for 18 months. My doctor tells me that it's an ankle and they take along time to heal.... okay fine but, football players get hurt all the time and they heal up alot faster then me.

Once again I stopped going to theraphy because it wasn't helping. My doctor appointment were getting further and further apart and when I was there it was for 15 mins and he didn't do anything.... I sensed he was in over his head.... He put me in a maffo brace because I now have no stabilaty in my ankle it just goes out on me. another red flag goes up okay I've spent all of this time trying to restrect my muscles in my foot and build up it's strenght why would you now make it stable?

So, finally I put my foot down with my Laywer as well and I tell him I'm no better I'm tired of Workmans comp screwing around with paying me and I'm not getting any better. A partner in his lay firm comes in while I'm there and he suggest a podiatrist that he went to who actually reconstructed his foot and they guy is fine.... I seen him walking around I was sold. So he gives my Laywer the number who then hands it to me.... his partner says no you call them now and get her an appointment or they wont see her. This guy is one of the best in his field and it's hard to see him in my situation. So, my laywer calls and I get an appointment the next week on Tuesday.

I go in and I take off my maffo brace and I'm sitting in the chair.... My kids are waiting in the waiting room within an ears distance.... The doctor comes in with a med student. He introduces himself to me and then he shakes my hand and he touches my foot.... Then he goes over and shuts off the air conditionig vents in the room and he tells me to take off my other shoe and sock and he'll be back in 15 mins.... and he'd tell us why when he came back in (My wonderful fiance was with me and has been through all of this mess)

So, for what seemed like an eternity they come back in he touches both of my feet at the same time and the whole time he's not saying anything but, he has this look on his face.... still not saying anything to me he tells the med student to touch my feet.... then the doctor begins by asking us if we ever heard of RSD? We said we heard it from my physical theraphist back in Jan. then he told me he thought that may be what's going on but, not to get upset and he wasn't going go into it until he was sure and that he wanted me to go see a neuroligist right away. So, that Thursday that's where I was. (When we got out into the car my kids mentioned to me that the med student was so shocked at how cold me left foot was and then they over heard the doctor tell him it's not good.- the kids didn't know what was going on at this point, it was just what they had heard)

So thursday I go see the neurologist and he does all of these test and an emg and he hurt me so bad I cursed at him, not on purpose but, just because of the shock. he started talking all medical trying to impress us with "Big doctor Words" he didn't like what he saw so he sent me to not one but two other doctors and for an MRI and some kind of an Ultrasound bone and Joint Study. And a Foot and Ankle Specialist.

I take all of these test results with me to see the specialist and he flat out tells me that I have a textbook case of RSD stage 1, I know that's the better of the two evils and because it's gone untreated for so long he doesn't have much hope for any type of a recovery.... he asked me what kind of a job I had I told him I was working in a warehouse at the time and he told me I would really need to rethink my career choice. then I told him that I was in elementary childcare/ education he said maybe as long as I could sit down for a good portion of the day. So, now I'm upset and all of these emotions are flaring up at once... I tell you... If I could have cried I would have. He takes out two sticky thermometors and places them on both of my feet... the right one registers the left one doesn't.

He gives me a bunch of literature on RSD and tells me to look it up on the internet. Because knowledge is power. He gave me a DVD on SCS and he gives me a perscription for Lyrica and two Sympathetic Lumbar Blocks. I've been on the pills for a week and the side effects stink and are really bad I had the first injection last Thursday, and I'm still sore from it. I've called my Laywer and now he says.... Oh J.C. I'm sorry, I don't know what to tell ya?

So, where does this leave me?

I know you just wanted an intro but, I gave you my whole story I cut out alot of stuff.

Michelle

 



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Reply
 Message 2 of 11 in Discussion 
From: MSN Nickname11robinwaySent: 4/27/2008 8:14 PM
Michelle, I am so sorry, What a run around you got. I hate to say but it's not that unusual. I have rsd in both of my hands since Nov. 2003.
You say you are on lyrica, awful side effects-I was given that, hated it. I want to tell you to make sure you keep talking to your dr. (through the nurse,I know) tell him about your problems with the meds. It took a while, but now I have a dr that listens and responds and I have a combination of meds that lets me function. I worry about my liver, but so far I haven't seen any signs that there are problems.
I tried a scs trial. Didn't help. I have had numerous ganglion shots (dozen one summer with less and less relief). I am watching what is happening with the ketamine trials and all. I don't want to jump in just yet. When I am having a flare up that nothing will kill, I think that I would like to try anything.
My family is very supportive. It's nice yours is too. I assured my kids that this was not inherited. I do worry that they might have inherited a predisposition for rsd. My 2nd daughter has such cold hands and feet.
Anyway, I just wanted to say, hang in there. Keep trying different meds and different combinations of meds to raise the quality of your life.
Heres to a low pain high energy day! ---what the heck are those?lol

Reply
 Message 3 of 11 in Discussion 
From: MSN NicknamefranknberrieSent: 5/6/2008 2:30 AM
Hello Michelle,
 First I will tell you that I am a man, I grew up with a father much like you described your X. I was 8 years old when my mother got up the courage to leave that crazy bastige, there was me and a sister and a baby brother when we went 1200 miles away just to hide from him. I understand what you went thru and doing it with RSD had to be horrible.As I grew up and older it was my goal to never be like my father but a good person....I succeeded in breaking the chain of Violence as did my siblings.
 Anyway, I am glad you are in our group. I am an assistant manager here and will help or try to answer any questions you might ever have. You have had a tough go of life, I hope we can help a little and we are really glad to have you.
Franknberrie

Reply
 Message 4 of 11 in Discussion 
From: MSN Nicknamekieferskitten1Sent: 5/8/2008 2:24 PM
Hey Frank,
 
  thanks for your kind words.  Your right I have had a hard go at life but, all in all.  I have two good kids a 13 year old boy with tourette's syndrome, OCD and tricitilamania ( who is starting to go thru puberty and is challanging everything) He's always right and I have no idea what I'm talking about and punishing him just isn't cutting it.  I know it's his tourette's and OCD but enough is enough sometimes, Poor kid takes as many pills as I do on a daily basis.
 
then there's my 11 year old daughter and she's 11 need I say anymore.
 
but, I'm not going it all alone I have a new hubby whose really great with them and me.  He really does put me on a pedastal.
 
I feel bad that they only get the half of me I can't give them all of me... cause I hurt too much.  I only worry that one day they will hold that againist me.  They say no but, do they mean it?  That's why I want to try the SCS I'm hoping it will allow me to give them more of me.
 
Talk with you soon,
Michelle

Reply
 Message 5 of 11 in Discussion 
From: MSN NicknamecosmicmamaSent: 5/8/2008 8:26 PM


Elizabeth Barr <[email protected]> wrote:
Michelle,
 
I wanted to write a personal note to you because you touched my heart.
 
Only a good mom would ever feel like they were not giving everything they could to their children.  When you don't care, then you know, and don't care.
 
If you feel like you are only giving half of what you want to give, just remember it is the best half, and a good half is better than a bad whole.
 
I wish I had been a better mom, but when in the trenches, we find a way to fight our battles, and then wish we had a better battle plan when they are grown.  We are just people, and do the best we can.  That is all we have.
 
You would get my award for best mom of the year.  My heart ached for your struggles with your health and concern for your children;  you also made my heart swell with pride knowing there is a "sister mom" out there giving love to her precious children even when they aren't so lovable. 
 
I have a problem when I try to send attachments, so I will forward two special emails I received about moms and women.  You will really enjoy these.  If you don't get these, let me know and I will try again.   
 
I will keep you and your family in my prayers.
 
Beth  

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.


Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

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 Message 6 of 11 in Discussion 
From: MSN NicknamefranknberrieSent: 5/9/2008 6:56 PM
Michelle,
 Just for a laugh I though I would tell you that I have 4 daughters ages from 15 to 32 and 2 sons ages 27 and 34. I then have from them 4 more girsl(grandaughters) and 2 more grandsons!
 The 15 year old daughter lives with me(Im divorved,something RSD had a lot to do with) because she is the baby of the bunch she is a little spoiled and there is no one on Earth smarter than her, I really found out how incredible ignorant I am......LOL  They all do that at a certian age and I found out from experiance not all at the same age,some a little older when I got dumb and some a little younger to tell me what I didnt know! Kids....dontcha love them? I do!
Frank

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 Message 7 of 11 in Discussion 
From: MSN Nicknamekieferskitten1Sent: 5/12/2008 6:17 PM
Frank,
 
God love ya with all of those girls... I'd take having sons any day.... but, like ya said kids ya gotta love em.
 
Michelle

Reply
 Message 8 of 11 in Discussion 
From: MSN Nicknamekieferskitten1Sent: 5/12/2008 6:23 PM
Beth,
 
   You are such a sweetheart.  I was having one of those hard days and then I happened upon your email and it made me feel that much better.  So, bless your kind heart.
 
I didn't get those attachments but, you can send them to me privately if you'd like. Here's my addy:
 

Reply
 Message 9 of 11 in Discussion 
From: MSN NicknameFireball4303Sent: 5/14/2008 3:14 AM
Hi there Michelle,  It's nice to meet you.....Nice story....Glad you seemingly are handling the RSD thing....All any of us can do is our best.....I fell on the job last August...Right on my arse...Didn't break anything...hurt myself good though....It seem's like it's a circle of physicians though....Round and round we all go....Where we stop nobody knows....I have a decent WC Dr now...But she's sent me to a rheumatologist now too.....And that guy's not convinced I have RSD.....(shakes her head).....He's one of those who has to do all these unnecessary test's again.....(sigh)....so he draws more blood and even did a ua on me....hahahhahahaaaa....dumb arse....oh well....whatever....I'm on more drugs now then I've ever been on so dunno what he think's he'll learn from my urine except for the fact I'm WASTED......hehehehehee....It's not a funny thing Michelle....But I have to laugh...or I might kill someone.....ya know>?......Now that the weather's warmed up....I'm wearing shorts and dress' and showin off my purple legs.....Talk about funny stares....Just lovely.....Welcome to the group Michelle....Look forward to chatting with you sometime....Take care and big soft hugs lady.....Diana

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 Message 10 of 11 in Discussion 
From: MSN Nicknamemirage_angel_hopeSent: 7/19/2008 3:42 PM
kieferskitten
sorry for the latereply this post just showed up in my email now,weird
Thanks for sharing you story with us.Stories like this make me especally sad since it did not have to happen. I hear this story so many times  and break my heart every time.This story just shows me what  a strong woman you are to have gone through all of this and still be fighting.It is wonderful that you stll are able to be an amazing mother to you kids and haven't let anything stop you.
It was very insprational to me as I am going through a very diffcult time myself
mirage

Reply
 Message 11 of 11 in Discussion 
From: MSN Nicknamekieferskitten1Sent: 7/21/2008 6:35 PM
Hey Mirage,
 
It's nice to know that other people can see how strong a person can be caue sometimes when your right there in the middle of it... it's hard to see or you just take it for granted.
 
Sometimes I just feel like I come up little short.  I know I don't ... I just wish I could go and do more then what I've been reduced to do.  All of us on here got jipped of a pain free life so we make the most of what we got.
 
And, in my gut I know that this didn't have to happen and it burns me up and I get mad, and I cry, and then I get over it and move on... I don't think I'll ever get over it but, I deal with it.
 
It really does suck that you can't sue worker's comp doctors cause I really think that the laws need to be re thought.  It makes me sick that becaue of people who lie people like us who are realy husrt have to suffer for the rest of our lives.
 
Talk to you soon,
Michelle

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