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RSD Intro's : I have a question about states..
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(1 recommendation so far) Message 1 of 11 in Discussion 
From: Kellye  (Original Message)Sent: 5/19/2008 4:19 PM
Hi everyone...I am new, but not really...been reading posts for awhile now..I have found that this group is so great and there is such a wealth of knowledge about my disease...RSD..that every question I ask myself of my doctors I can find here...I have even used some of your posts as a weapon against some of my doctos's plans for me...
I have had  this disease for about 8 years now..and because of me waddling, because of the pain, I have 4 bad disks in my lower back as well..I have had doctors in MS, LA, MD, CA..and now in florida...I loved only one of my doctors..he was in CA....I have already been through three pain doctors here in Florida since November..They all seem to agree here to aggressive physical therapy..which is why I am bed rest now...and they all want to put in the SCS, which I do not want...so I have changed doctors three times now..and this one believes the same...My doctor in CA was great, he believed in massage and slow physical therapy..and always took in account for my back and my legs...but now my rsd is in my arms too..because of the therapy here I think..but the doctors disagree with that..funny my arm wasn't ice cold and burning and hurting before the physical therapy..I can barely type anymore...
To my question....Why are different doctors in different states educated differently...why do some think "Pain is Gain" while others disagree...the doctor here even swears to me that applying ice to my rsd sites will help...even the Physical therapist almost put ice on me..I had to leave before she did it...The people here have only hurt me...I cryed so hard during my "therapy" that after an hour, I almost threw up and passed out...They wouldn't stop even though my foot was going numb because of the pain in my back....(my husband wont let them hurt me again)....but why are they all so different..
I am even thinking on trying doctor in Alabama now..because I have heard that Florida doctors are not good...I am on a whole bunch of heavy pain meds...they haven't tried to wean me..yet, but the way they are acting I think that might be next..to just leave me in pain..
What would yall do, in my shoes...I want a pain pump....but the doctors here, three of them, said not until I tried the SCS..my doc in CA said he wanted me to have the pain pump..and that when i got to florida, he wanted me to find a doctor to do that...but after three tries...they all want that SCS put in me...
Any advice, would be so appreciated..
Sorry will type more later..my pain..
God Bless you all
Kellye
 


Replies to This Message The number of members that recommended this message.    
     re: I have a question about states..   MSN Nicknamelgs131  5/20/2008 12:51 PM
     re: I have a question about states..   MSN Nicknamefranknberrie  5/20/2008 8:42 PM
     re: I have a question about states..   MSN Nicknamefranknberrie  5/20/2008 8:46 PM
     re: I have a question about states..   mamajama  5/20/2008 11:35 PM
     re: I have a question about states..   MSN NicknamePhillip99621  5/21/2008 3:21 AM
     re: I have a question about states..   MSN NicknameSylviaMarieZ  5/31/2008 11:15 AM