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| | From:  SylviaMarieZ (Original Message) | Sent: 1/13/2008 6:10 PM |
If you see me walking down the street, or shopping at the store, I will look like everyone else. A smile on my face, walking sometimes with a shuffle and a limp, trying to conceal the pain of RSD, my unforgotten friend. There are days that aren't so bad, when I forget about my RSD, but RSD does not forget me. Sometimes I think that I'm the only one who knows the true meaning of chronic pain and suffering. The physical anguish is not alone, you see the mental pain stays with you, never letting go. I wish one day for all the people with RSD to wake up just one day and all be pain free. What a blessed life we'd have, like a dream come true, a fantasy. For now I must keep going, with my chin up, thanking God and my doctors for how much they've given me. Helping others to learn and try to understand Reflex Sympathetic Dystrophy. For now I will be thankful for each and every day, for every suncrise, for everything God has made. I will carry on, keeping strong, loving my family who strengthen the bond. |
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How on the button Sylvia Marie, your anguish sounds just like me. I sure the rest of us would agree, what you have written about RSD. |
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Hey Franknberrie, thanks! I did have a support group several years ago, but eventually people quit coming, one at a time. I still think we need support groups, speaking engagements, and just plain more television exposure RE: RSD. Any ideas? Syl |
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Thank you for your input. I am doing better than I was originally. I was unable to even pick up my feet or climb stairs. I had to write with my right hand. (I'm left-handed). Now, with ECT I am able to lift weights, ride my bike, and just about anything anyone else can do. Please check it out with your doctor. We can chat later and see what you think. Syl |
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| | | From: ladojo | Sent: 2/2/2008 12:59 PM |
Hi and gentle hugs to all my new rsd friends.
I woke up with a little less pain this morning, it was difficult to finally stand and walk. I thank God everyday for my little walker.
Up until about two weeks ago, I thought I was on my way to remission, but the ugly dragon roared its fire and terrible pain again. This time in my left side, especially in my arm and shoulder. I tried increasing my dosage of Lyrica from two 75m a day to three daily because of the increasing fire in my right hand, arm and shoulder. My right hand being the place my rsd started 2 1/2 years ago. After the first day of taking the extra lyrica daily I started having more pain, and it got so bad that I called the dr. and was told to go back to the twice daily dosage. I am doing some better, the bloating and the terrible appetite is gone, but the pain in the left side is lingering. I take a lot of different meds. Five regularly and another couple frequently. I can't imagine not having something to help through the pain, but it's terrible when none of them help much. God bless all, and may we be blessed with a few days pain free!
ladojo |
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The disease that captures your inner spirit, like a preadator captures its prey. Never leaving you or going away, the RSD seems to stay. It has no bedtime, it has no schedule, the lasting pain will come and stay, making its rounds each and every day. At last I found the fight that calms the pain, and gives back your soul. ECT, my saving grace, has took my soul and with hope replaced. I walk, I jog, I refinish furniture. The things I do now that I thought were over are back again with hope and faith. This is good and I will continue to tell the story of my glory and how real it felt. I pray for you to seek the help that I did. Never give up, the cure is here, are you smart enough to use it, or will you think it just disappears. RSD survivor, Sylvia |
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