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| | From:  -Lølá- (Original Message) | Sent: 5/2/2008 4:39 PM |
I have a SCS and it is not only very painful at the leads but i seem to get shocked anytime I touch things ..doesnt matter what kind of things i touch.. I asked the doctor and he has never heard of this before ... Has anyone?  |
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| | | From: -Lølá- | Sent: 5/2/2008 4:58 PM |
PS .. I have scar tissue at leads or a nerve is impinged .. <very unhappy face> |
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I was diagnosed with crps or rsd with the dystrophy in 1995. Caught it early, and have the pain and emotional effects of long term pain. Now with the pending w/c litigation, after 13 years, the stress may well have a lot to do with the awful increase in pain and feeling the effects of burning in different parts of my body. Left arch and left thigh burn intermittently.
Yesterday I was treated bilaterally with somatic block of the nerves, accessed from my under arm. The effect for 8 hours was complete paralysis of my arms. This am I look forward to feeling some improvement. You all know that it sometimes takes a short while to feel the effects of most blocks.
Any experience with this treatment would be greatly appreciated. The original procedure was to be a biracial plexus block, but was changed to treat my specific areas of pain.
At the meeting with this md, he brought uo the scs, as have two other mds. I have devoted years of my life battling this disease that invaded my body, and have had success beyond my hopes. The bio feedback, self hypnotism, and isolation when needed, to focus on my own power of relieving the pain.
I have never accepted that RSD resides in my body, and that no matter how profficient I become at self management, I will have to give in at times.
It is almost a religious thing with me. The idea of a foreign object in my body almost signals that I can not take of the pain on my own.
I read the things posted about problems associated with scs, but have been encouraged by successful stories from mds. I now realize that the time is soon approaching that I will have to try something else.
Please, all feedback is needed. Success and failure with personal use of scs and info from others is needed.
Thanks for reading my lengthy request.
--- On Fri, 6/13/08, RSD Helpline Support Group <[email protected]> wrote:
From: RSD Helpline Support Group <[email protected]>
Subject: Re: Spinal Cord Stimualtor Questions
To: "RSD Helpline Support Group" <[email protected]>
Date: Friday, June 13, 2008, 7:11 AM
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| From: -Lølá- |
PS .. I have scar tissue at leads or a nerve is impinged .. <very unhappy face> | |
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One more question. With successful scs were you able to return to work? Did it alleviate or just dull pain? Can you do things you want to, or are you still limited?.
--- On Fri, 6/13/08, RSD Helpline Support Group <[email protected]> wrote:
From: RSD Helpline Support Group <[email protected]>
Subject: Re: Spinal Cord Stimualtor Questions
To: "RSD Helpline Support Group" <[email protected]>
Date: Friday, June 13, 2008, 7:11 AM
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Spinal Cord Stimualtor Questions
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| From: -Lølá- |
PS .. I have scar tissue at leads or a nerve is impinged .. <very unhappy face> | |
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Hi Cosmiomama, Your write how I feel very well...lot of that going on in this group! I have RSD in my upper extremities for comming up on 9 years in August. I have not had an SCS but my younger brother had a trial for 2 days because of lower back surgery where they put metal in his back..the SCS affected his bladder and many other problems from the git go and I took him to the emergency where his DR was waiting to take it out after only 2 days! I have been getting upper eppidurals every 4 months, they have been working wonderful for me....its like a new life almost instantly for up to 4 months, but I still have to take meds but 30% less. Frank |
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I was wondering if the scs, which would treat upper body, is something I weigh heavily. With success of epidural drips, does your function level interfere with your ability to work, or is your pain ;level much more controlable? Are you still affected by the triggers to the same degree as before treatment? Do you still require treatment with pain meds after treatment. I had an epicural in about 98, and got some relief but then returned to ganglion blocks, Can only do that so long before scar tissue becomes an issue. The old Bier blocks were successfiul as anything, but the turniquet was a problem When biertilium(sp?) was no longer manufactured because of the profit issue, substitutes were not as successful. Something must be done soon. Epidural drips, the new kind of nerve blocks or scs. Those seem to be my new choices to consider. If there are stories of success with any of these procedures, please share. Thanks, Frank, and I am so pleased that you have found something to finally give you more joy in your life. You sound like a pretty tough guy to have come out on top after so much even proving to your insurance company that you were credible. |
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Hi Cosmicmama, It was the insurance company and their comp Dr's in their W/c Clinics that I had to prove were not credible!!! I am credible, and when I went to see a neuroligist and a pain specialist out of my pocket and got a real diagnosis the insurance company looked pretty bad along with the catching thier comp Drs intentionally falsifying my records to make me go away...the comp Drs were just doing what the insurance company told them too. My comp lawyer is the best comp lawyer I ever met, he kept just letting them hang them selves and telling me just wait, they will keep screwing you over,we can prove it but we will wait till they really do something bad....and they did! I dont know how the comp system works in other states but I have a therory about the one in Colorado and her is my opinion. They are the biggest colaberating crime syndicate I have ever come in contact with, they have Drs on their payrole, along with the suposed IME or independant Medical Evaluators and even the psycoligists that give them the report that the insurance company wants...my lawer was able to prove everything I just typed. The comp insurance companys have total control of your fate! I have written state law makers and sent along copys of records for proof along with many others here in Colorado...laws have alrad been changed in the last 12 months because of the outcry of ailing patients. Please go to this page of the Denver Post! Frank |
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