Hi Cosmiomama,
Your write how I feel very well...lot of that going on in this group! I have RSD in my upper extremities for comming up on 9 years in August. I have not had an SCS but my younger brother had a trial for 2 days because of lower back surgery where they put metal in his back..the SCS affected his bladder and many other problems from the git go and I took him to the emergency where his DR was waiting to take it out after only 2 days!
I have been getting upper eppidurals every 4 months, they have been working wonderful for me....its like a new life almost instantly for up to 4 months, but I still have to take meds but 30% less.
Frank