I was diagnosed with crps or rsd with the dystrophy in 1995.  Caught it early, and have the pain and emotional effects of long term pain.  Now with the pending w/c litigation, after 13 years, the stress may well have a lot to do with the awful increase in pain and feeling the effects of burning in different parts of my body.  Left arch and left thigh burn intermittently.

Yesterday I was treated bilaterally with somatic block of the nerves, accessed from my under arm.  The effect for 8 hours was complete paralysis of my arms.  This am I look forward to feeling some improvement.  You all know that it sometimes takes a short while to feel the effects of most blocks.

Any experience with this treatment would be greatly appreciated.  The original procedure was to be a biracial plexus block, but was changed to treat my specific areas of pain.

At the meeting with this md, he brought uo the scs, as have two other mds.  I have devoted years of my life battling this disease that invaded my body, and have had success beyond my hopes.  The bio feedback, self hypnotism, and isolation when needed, to focus on my own power of relieving the pain.

I have never accepted that RSD resides in my body, and that no matter how profficient I become at self management, I will have to give in at times.

It is almost a religious thing with me.  The idea of a foreign object in my body almost signals that I can not take of the pain on my own.

I read the things posted about problems associated with scs, but have been encouraged by successful stories from mds.  I now realize that the time is soon approaching that I will have to  try something else.

Please, all feedback is needed.  Success and failure with personal use of scs and info from others is needed.

Thanks for reading my lengthy request. 

--- On Fri, 6/13/08, RSD Helpline Support Group <[email protected]> wrote:

From: RSD Helpline Support Group <[email protected]>
Subject: Re: Spinal Cord Stimualtor Questions
To: "RSD Helpline Support Group" <[email protected]>
Date: Friday, June 13, 2008, 7:11 AM

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Spinal Cord Stimualtor Questions

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From: -Lølá- PS .. I have scar tissue at leads or a nerve is impinged .. <very unhappy face>

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