Thanks for the feedback on different activity levels that leave me so puzzled.  

I know I shouldn't be concerned when people look at me and wonder if there is really anything wrong with my health.  I don't share stories about pain with others because it just doesn't help and it seems that when I talk about " it " I seem to give it a life of its own.  I don't ignore it,but something about hearing my own voice say how badly I feel is too much.

 

I still need your stories, please.

 

Again, I have no distrophy, never lost range of motion, and on some days the world is mine to take on.  Then, there days with pain that I can work through,  and days when there is no choice but to be still and wait.

 

Something else I wanted to share is that my shrink perscribed Provigil to help with my energy level.  W/C approved, because the lack of energy was so depressing when I could never get anything done and never had the energy to try.  It has been a miracle for me.

 

For the women, here is some info given by a md early in my care.  HRT with the use  of pellet implants changed my life.  The combination is estrogen and testosterone, and there are some wonderful advantages.  Bone density is affected very positively,energy level and strength is greatly improved.  Libido is much improved.  My risk for heart disease is also positively affected.

 

My gyn told me that my hormone level with the testosterone  would give me the physical advantages of a woman of 37, and I am 59.  I have used this treatment for 6 years, and my life improved almost immediately.

 

There are doctors that use the implants, and some that don't.  I had nothing to lose, and I required hrt anyway.

 

The inet has some info on the pellet implants.  If anyone else has had an experience with this kind of hrt, please let me know.