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hi group i had back surgery 3/05; with the burning in my right leg that didnt end with sugery and the surgeon said looks like a little causlgia. w/o any explainations; and i left with my first steroid pack. over a year later the disc tissue that stuck to the nerve is now growing its own scare tissue on my root nerve in the l5 area. i have had farely good care and medications have been given. but stress is a killer; i have tried to explain this and others dont understand how i can be getting worse; the mri isnt something u can just pull out of your pocket and say see look. lol yes, i have a sense of humor. always have and always well. so yes, althought not thrilled by this have to see what i still have. oh and if a post and it makes no sense, i've lost my ablitiy to put words together.. when speaking i come up with some dozzies lol really have to laugh at myself when i realize what word my mind tossed out. like a said its the stress that is doing me in; mom in particualar that called and screamed at me every day i was on morphine and then fentenyl until i demanded to be takend off them and put back on tramadol and other meds to deal with the pain. now is screaming at me over my daughter 6 months prego and the moodiest person alive. even claimed last time she had a temper fit that i abused her - what a crock of butter lol. so when sister and hubby told her that she should be more supportive of me ;she screamed even louder and then her brother died and wouldnt even give me details and before she left called and screamed at top of her lungs i hated her and her brother is dead three time and last time i hate u and hung up. just spoke to sister and she hasnt heard from her either not even to give us time of the service. is hours away and with work we really couldnt attend since we only met him once. not really close. so my bad leg has been twisting for a week with my knee as big as a softball and both legs black and blue for the pulling, i can barely walk. if feels like my ankle is broken; but i dont think so. have apt. with spec on the 6th so hope i clear up by then. ty for letting me dump, its always better then holding it in and sure more then u wanted to know about a stranger but sry i needed to be free of it. ty ty ty mary in iowa artist and budding muscian |
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hey- sometimes humor is the only way to handle this! also, the inability to string the correct words together sometimes goes w/RSD: i never had this problem before, and now find it nearly impossible to find the right word for the situation. it can be extremely frusterating. and stress definately elevates the pain, as well as pain elevating the stress, talk about a catch-22! but learning how to cope w/both in reasonable (yeah, right) ways can help reduce the irritation youre experiencing, emotionally & physically. i just started nerve glide therapy, which i convinced myself would be this fantastically wonderful type of therapy (it sounds nice, adding the word 'glide' in there, doesnt it?), and while it is EXTREMELY uncomfortable while happening, afterwards i feel much looser. dont know if youve tried it, or if your drs would reccommend it for you, but its seemed to help me, so far. the problem, in my experience, is that RSD is really smart, and quickly adapts to new therapies/meds, rendering them useless. its quite a bite in the ass, finding something that seems fantastic for 3 weeks, then suddenly doesnt work. anyway, its important to vent your frustrations, otherwise they will add to your stress & pain levels. i think thats why most of us are here, to give our loved ones a break from this & to talk to others who actually feel like we do.. -adrienne |
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hi ty for your reply i have tried that for the fms, i made me little sick to my tummy. hope u arent dealing with it and yes even now its feels great until i move. but i cant stand to have the lower right leg touched at all now, so out of the question in the worst area. so much better in someways before i started in the pain clinic a sheet made me scream and i've tore my ligments in my ankle and couldnt be touched; but there was no need for screaming. funny this really is a different type of conditions-even now as i wait for meds its just searing. ps on the up side my mom was given a gift when she went to the funeral for her brother and i believe at least for now has come home a new women. and as close as she could without bringing it up and upsetting me over again did explain her behavior. a first and i think a sry or as close as im going to get from her. u know mom, has to be in control of her non wild church going 2 non drinking daughters and love her to pieces lol she cant help it - "got to love me " lol tytyty mary happy to have recieved in my lost the gift of 4 new cuz's and their family |
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Welcome {{{{{MARY }}}}}} so glad you found us here.. Thanks for venting... Please know we all are suppose too avoid stress.. ya,, rite,, we suppose too ,,,,, when we cannot work,, we cannot do the normal things,, we cannot move,, that really sounds logical,, I know ,,, we all have too find ways... Humor sometimes is only thing that gets us thru,,, That is what we all look for.. Treatment is crucial too help that from spread.. We all have been thru our share of drs. It sometimes really takes an long list too find the rite one.. Drs. are becoming aware now that is it a serious affect on people.. That is a small step in rite direction.. I have been dealing with for six yrs going into the seventh yr now.. WOWW,, weather ,, treatments are all different on each of us.. So have a super great weekend.. that is safe... Keep us posted.. do not be afraid too vent. Be happy tootalk too ya on yahoo messenger.. [email protected], be happy too anytime,,, take you too other sites taht are more active.. Take care.. annie |
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Thank you {{{{adrieanne }}}}}}}}}}} for being a help with support. I was offline due too being in therapy n eing sick.. I am super tired of side affects of all the meds.. WOW,,, the past few months I have had more than my share.. It suxx biggg time.. I am still researching,,, alternatives.. I need a break from all of this also.. O well,,, you are soo rite in needing a break from familys,, n suck,,, Stress certainly does not help our pain or reduce levels in any way.. So please feel freee in contacting me on messenger.. yahoo,, annie5769020... I am certainly not getting any breaks with the weather helping at all.. UGZZZ I hate it all.. O well,, such is life..There are more n more drs recognizing that RSD is not anything that anyone should have too deal with ... Yes it is smart.. Nothing helps for long.. I am very very thankful for the morphine pump.. That is kewl.. I have soo much other things that are wrong.. I cannot say it is RSD pain or not.. So Have a pain free weekend,, super great safe weekend.. Thanks again enjoy please feel free too post anytime ,,, about what ever is going on ... Thanks again annie |
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both annie's ty for your replys, and wow i have been reading about the work stress. now i can be nosey, but if it were me i would have given up a long time ago. u have a gift and u can be of great use in support for rsd; but i understand not wanting to let them cheat u out of your work, lifetime worth of studies that would be lost. i dont know how to get your employer to realize that.they are losing out of a mind trust. am lucky i can just pick up the camera and poof i leave a record; what i now believe my art training as directed me too. i dont need a boss or even to be published i just need to print and document and wait. someday when the time is right someone will want my river studies and outdoor shots. first annie i dont use yahoo, is there a mail list?? that is more? active ty and both and all that replied to my post have a safe weekend as well, lynn in ia |
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{{{{{{ Lynn }}}}}}}}}}}}}} WOOWW<<<< stress we need too stay away from,, it will really bring rsd too flare really fast if not a larger flare. When going thru with hubby cancer n treatments, n funeral,, My right foot got real large lesions., N swollen,,, n colored.. N temps were changing faster than a anything could move. So,, Anything we find we use,, trouble is rsd is soo smart.. it seems it really mutates n goes too other places.. Thanks for sharing,, anything too help,,,, LOLOL I like yahoo alot better than msn,, I have msn messenger add me if want too ,,,, [email protected], thanks alot anything I can help with just give me a holler,,, I am signed in to both when I am online.. annie |
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