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| | From:  Tami62 | Sent: 3/22/2008 3:25 AM |
Hi kunzite2, I have been trying to post a reply for days now and my computer is fighting me. Sorry no one has answered you yet. My name is Tami and my husband has RSD and severe muscle spasms. The only things that help him are his meds and limiting what he does. You probably notice the muscle spasms more when you are more active. Unfortunatly it is the nature of the beast and will not get better. You can how ever controle some of it. I don't know what your doctor is giving you to help with the spasms but if it isn't working very well then you should talk to them about somthing different. If you aren't on anything to help with muscle spasms then you can ask for something. If you want to try to control it naturally (no meds) you can try meditation techniques. Also the bio-feedback is a good tool to help with meditation. Ask your doctor about it. You should also remember your limitations and don't over due things. When you start feeling tired in the areas that are affected you should stop. Don't try to keep pushing yourself because you think you should be able to still do all the things you use to. I am not saying to quit doing everything but take things slower and watch your bodies signals. How old are you? How much activity are you into. What is your day like? Where exactly are you affected with RSD? The type of activity you do on a regular basis might have something to do with it too. One of the members here will sometimes go to a heated pool to help him. You should ask your doc about that too. The temprature has to be set at a tolerable temp for RSD. I don't remember what the temp should be but I will try to find out again. Too hot or too cold will aggrevate your RSD. Keep checking the boards as others will probably reply soon. Introduce yourself and a little about your situation on the RSD Intro link on the left of the boards so that others know who they are talking to and what help they can offer. I hope to see you post more and to get to know you. Tami |
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Hi Kunzite2, I am the person Tami said uses a heated therapy pool to help with pain and muscle spasms, you want to make sure that the pool is heated to at least 94 degrees. A regular community pool is bad, they only keep them at the olimpic temp of 78 degrees and thats way too cold for RSD and it will cause terrible spasms and it also caused me to cramp up...remember 94 depree therapy pool only. Go out into the deeper water, just above your shoulders, that will take the weight off off your body and the water will lift you somewhat...let it! Most therapy pools have stryofoam floating devices, put one under your arms and let your body just hang there and relax and streach out. There is such a thing as a pool therapist, i used one for a while and she helped a lot....check it out! K? Frank |
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Hi there,,,,,,,, So sorry that you are going thru this being so young. i keep reading that you are young one n it is getting in way of your life. My dear,,,,, it really really tears my heart out for you... I dealing with those spasms on day basis also. Interferes with my life greatly. I do hate it with a passion..... as you well know that the spasms hurtzz n brings on more pain n bringinig on more spasms which creates a endless vicous circle.. and so draining on the body... Only we know what this is.. till one goes thru this all in our bodies ,,, can one understand... Please know that i fel for n with you dear one. Yes there are some naturals that I do use alot of when money is there. Hoping will be here now for me to get back into.. Will see,,, tho will take longer now to get affects of since not being able too stay on program cause of not having the money... hope not too long. With being on more antibotics now n inhaler n coughing is harder still to post cause of the shaking that spasms leaves yah with.. Coughing n coughing till phelm comes leavings one really shaking also extra... My body is drained. My dear,,,, my heart really feels n goes out too you..... One thing u get stressed to your drs... Relief is needed as spasms really drain the body n mind... And one needs too function. Dr will work for answers... One thing that you may know,,, bacolefin pills works,,,,,,,,,, honestly... if dr is honest dr. when they stopp,,,,,,,,, the liquid will continue working longer but can be changed.... the spasms are being helped,,,, going to talk to dr about it,,,,,, they hurts n hit hard this week....... But the morphine pump can also be used for bacolifin {{Spelling}}}}} .... Please note also.. the side affects from these meds are not going to be had or felt as with the pills..... Missing the blood stream n liver n kidneys.... can think straight... Yes,, we still with constipation n dry mouth n med mouth, no getting way from that one or some others.... But all that we can avoid is best way to go also... Note here,,,,,,, talk too dr about your meds... stress the spasms to him... talk n do not be scared to ask ?? yes the spasms affects the bladder n bowels in the severity... Totally a bigg issue in life.. Grrrrrrrrrrrr!!!!!!!!! Hope that you do get some relief soon.... There are breaks,,,,,,, they do come in for short relief... Not long lived tho... soooo tiring n draining.... Huggzz too yah... |
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It has been my experience a heat spa work wonders!
Of course we can spend all day in the spa.
Tag me for more info on stopping spasms that I use
[email protected]
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Hi, I have muscle spasms also. I was just prescribed Flexeril, the generic. I had them in my legs and feet so bad it was keeping me up at night. An herbal remedy to calm the nerves is Lavender. You can warm a wet towel in the microwave and wrap inside the herb. It smells wonderful. Best wishes. Hang in there. Syl |
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Hi,
My daughter had very bad spasms, she couldn't sleep at night, her chest would hurt each time she took a breath, her hands would claw and her feet would curl up so she couldn't walk. Sometimes her whole left side would spasm at the same time and she would look and act like she had a stroke.This would happen many times a day.
We used the heatpacks to relax the muscles but it was a losing battle. Our family doctor prescribed Quinine, the stuff that stops malaria. The difference is night and day. She still has spasms but they are less intense, less in number and she is so much happier.
The Quinine is supposed to have less side effects than the other medication and here in Canada it is used for paraplegics for the same reason,
Hope this info helps. |
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