I shudder to think how miseravle you are.  Only had it hit me one time with  something can't even start to describe as freezing.

It was July, no air conditioning, in two sleeping bags with an electric heater and the fireplace blazing.  It was in the nineties outside.  My husband came and walked into a sauna, ha ha.

 

I was still cold, but muuuuch better.

 

Try the sleeping bags and electric heater, and try to relax and imagine warmth soaking down through your bones.  I know how miserable you are, and hope this will change for you.

 

You are not alone out there.  You are already stronger because you have to be,so hang in there.  I will do some research on locating mds treating rsd.  Is there a university hospital near you?  If so, these people are good

. 

 

441351 <[email protected]> wrote:

Chris441351,

Where do you live?  We used to take my son to a chiropractor just outside Pittsburgh who treated my son using thermal imaging to see what treatment was needed and how her treatment was affecting the RSD.  She got rid of the cold pain in my son's feet.  If you would like more information about her, contact me at 914-723-1099.   Linda

Although she is a chiropractor, that is not what she was doing on my son.  She has developed a treatment using modulated light therapy.  We heard about her from a woman in Canada who is head of PARC [Promoting Awareness of RSD in Canada] who told us that this treatment has reduced her pain level from an '8' to a '2'.  We drove 7 hours from New York to Pittsburgh for the treatment.  I am usually home whenever my son does not have appts.  Try phoning anytime and leave a voice mail if I am not here.  I will call you back.  Linda.

Hi there Chris.....Sorry to hear about your temp being so cold.....I understand exactly what your talking about.....I have the problem from the waist down...and my left leg is 2.6 degree's celcius colder than my right leg.....I wear a pair of mongolian wool slippers that go up past my ankles...to try to help.....the only thing that I have found that will indeed warm up my legs is a feather matress and a feather comforter....and I use a feather pillow as well.....but about 10 minutes after I get up....my legs turn purple mottled again and freezin cold....I can't feel their cold unless I touch them with my hands.....I even get goose bumps that I can not feel either....less I touch them....the cold to me is not like going out into the snow....it's strange....have you ever tried those hand warmer things that you gotta smack to activate....I used those as well along with insulated sox.....if you can't afford feather stuff.....perhaps what they used to do in the olden day's would work.....take a couple of red bricks and put them in the oven....heat them up to about 350 and leave them there till you think there hot....then take them out and wrap them in a towel and put them under your cover's....you could make a line from like where your feet go on up to your shoulders....if you have enough red bricks that is....hubby might bet a bit hot....wooooooohoooooooo...oh...not that kind of hot....silly me....(smiles)...just tryin to throw a little fun in there.....I have recearched the net Chris....and I finally have one Dr that I told what I wanted to be medicated with....from lyrica to pamelor for depression....and codeine and compazine....and I got all the above mentioned...oh yeah....and lidoderm patches too.....search the rsd sites good Chris....they mention what med's we need....just gotta be careful about mg's....for example....I take 150mg's of Lyrica in the morning....and since I take 100mg's of Pamelor at night.....I only take 100mg's of Lyrica at night.....and I never take my pain med's prior to sleeping....don't wanna over do it....they are for in the day....I use Lidoderm patches at night.....Learn all you can dear Chris.....Be your own advocate.....Many soft hugs dear one....xoxoxoxoxoxoxoxoxoxox......Hope you warm up soon.....Diana

I suffer from hot and cold flashes where one moment I am freezing and the next I am boiling. This is caused by the sympathetic nerve. I found this out when I was approached with the suggestion of a sympathectomy. People get a sympathectomy when they have a problem with sweating, they say by cutting the nerve your body is not feeling the temperature as much so it slows down the sweating. I was then told that since i get nerve blocks regulary I am causing the nerve to overact even more so.