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RSD Questions : Lyrica
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 Message 1 of 9 in Discussion 
From: MSN NicknameTineecat1  (Original Message)Sent: 4/8/2007 7:20 PM
Hi everyone,
I'd appreciate any input about Lyrica. I have tried and do not feel that it may be right for me......I became very forgetful, locked the keys in car 2 times in one day. I just tried for 2 weeks...bad dreams and foggy when awakening. Has anyone else had good or bad. Do you think it might be worth the side effects.
Thanks


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 Message 2 of 9 in Discussion 
From: MSN Nicknameannie570111Sent: 4/9/2007 12:26 AM

My Dear {{{{{{tina }}}}} that is just another seizure drugg dear one,,,, with those kind of side affects  soo early on,,,  I  would be seeing the dr...  He should not want u having those kind of side affects... not at all.  I hate it when drs. want too give  those kind of meds too us for pain...  That is me.. what all that I been thru with those..  I hoping that U check now with the dr. about that.. RSD gives us enough sleepless nites dear one.. with out  the nitemares   tho  sometimes  rsd does that to us also...  U take care,,, let us know what the dr. says please.  Have A   


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 Message 3 of 9 in Discussion 
From: MSN Nicknamekatie1014011Sent: 5/6/2007 7:14 PM
Hi!  Lyrica is said to be the "new & improved" version of Neurontin.  Although I've had no problems yet with Lyrica, I did have problems similar to what you describe with Neurontin.  PLEASE go to see your dr. soon about this.  My dr's took my off the Neurontin right away & even sent me for brain scans to be sure that all was o.k. - I'm not sure exactly what they were looking for, but to be on the safe side talk to your docs about this real soon okay? (smile)
 
Also, I've had MAJOR problems with memory since getting RSD 6 years ago - and it has gotten worse over time.  I'd like to talk with you about the types of things this means for you, as my docs are telling me that it's not associated with the RSD, but many others have said that they experience it as well.  If you get a chance, please email me at:  [email protected] - I'd love to talk with you further about this!
 
Take Care,
Katie

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 Message 4 of 9 in Discussion 
From: MSN Nicknamelgs131Sent: 5/7/2007 2:19 PM
Hi,
 
My son is just being taken off Lyrica bc of the side effects.  Not only has he gained a tremendous amount of weight becasue he was hungry all the time, but he started having bad dreams and disturbing thoughts while awake.  The Lyrica was first cut by half and all the bad thoughts went away immediately.  They are now decreasing the remaining dose very slowly and increasing the substitute, Topamax.  My son finds that Topamax is not such a good pain killer as Lyrica but he is not on the full dose yet.  The bad thoughts and dreams were really awful and you should ask your doctor to try other medications until they find a better one for you.

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 Message 5 of 9 in Discussion 
From: MSN NicknameMOForteismeSent: 1/13/2008 6:30 PM
I think that Lyrica really works, but it does cost, both at the pharmacy and sometimes in the short term memory department.  As far as memory melt-downs, have you considered getting some type of pocket reminder or better yet a PDA like a Palm Pilot?  It was my own chronic short term memory problems that finally made me get my first Palm Pilot.  I've never regretted it.
 
Did you know that Palm Pilots (or any other kind of PDA) not only keeps track of your contacts, but also reminds you when you need to make an appointment, take your medications, or what the password is for getting in a web site.  With the built in alarms, it even reminds me when I need to call the pharmacy to get my scripts refilled, and it's all so handy.
 
Forgetting anything can be serious, but so is whatever nerve path health condition problem that you need the meds for.  Take the meds, feel better, and get yourself a reminder. 
 
A good thing thing about memory short-comings is that you'll become more organized than you ever have been before.  You'll also get into set patterns of doing everything from where you leave your car keys to how you keep your monthly bills up to date.  There's always a silver lining, we just have to look for it.

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 Message 6 of 9 in Discussion 
From: MSN NicknamestacenbillSent: 1/22/2008 12:53 AM
Hiya all. I have had RSD now since march of 1994 and have tried several different meds. One of the last ones they tried me on recently was the Lyrica and it stank not only did i have horrid nightmares the swelling was terrible as was the weight gain. I went off of it an within 3 weeks everything was back to normal thank goodness. There is a drug that is similar to the lyrica and its called Gabitral it has fewer side effects or seems to me its in the same class as the lyrica its just older and not as popular lol. Maybe this will help anyone out who is having problems with lyrica ask your doc about the gabatril you will be happier. Hugs to all, stace

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 Message 7 of 9 in Discussion 
From: MSN NicknamejimdazeySent: 1/22/2008 2:32 PM
Hi,
I tried a couple of restless leg syndrome meds. The
major side effect was horrible nightmares and a
generally dopey feeling.
I have not ried lyrica, but I have tried gabapentin
and topamax with some quite odd side effects (rage,
flying off the handle,driving over aggressively, loss
of hope). Im starting to think that the doctors are
just throwing anything at this disease that they can.
Any of the anticonvulsants that I have been on have
not helped me, and in fact my wife has told me that
she forbids me to take any of that type of med again.
And since she is the brains of the outfit, I think Ill
listen.
jfd

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Reply
 Message 8 of 9 in Discussion 
From: MSN Nicknamekieferskitten1Sent: 4/25/2008 12:19 PM
Hey all,
 
 I'm currently taking this Lyrica stuff and it would explain alot of what's not right with me... I don't attribute it to all of my bad nightmares cause I've always had them.  But, I will attribute it to all of my 80lbs weight gain and what's more.... why doesn't my doctor seem to care?.... Next appointment I'm speaking up about a switch.... I'm so glad that I read this....  also I've become a real forgetful person and yes... Hat's Off to the good old palm piolet.... Mine is my right hand man....
 
 
Take care,
Michelle

Reply
 Message 9 of 9 in Discussion 
From: MSN Nickname-speechless-for-once-Sent: 5/14/2008 2:46 PM
hey guys.
i tried Lyrica a year ago and my body completely rejected it.
I would be perfectly fine and walking around and then i would just stop and not recognize anything. I would forget where I was and who was around me and how to talk.
It was pretty brutal.
Mind you I do not take well to many medications.
I'm currently on Gabapentin and Amitryptaline.
They don't seem to do anything but at least they're not making me sick!

I hope the medications work for all of you and that you find relief!
( L )

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