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A PLACE TO VENT�?/A> : DON'T YOU KNOW IT'S ALL IN MY HEAD
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Reply
 Message 1 of 3 in Discussion 
From: MSN NicknameLulu975  (Original Message)Sent: 7/7/2006 9:30 PM
YES, MY GP THINKS THAT THIS FIBROMYALGIAIS IS ALL IN MY HEAD.
I WAS DIAGNOSED A WEEK AGO AND THAT'S THE SUPPORT I GET.
IT'S ALL ABOUT THE ANXIETY/PANIC I HAVE ...IF I COULD MAKE THEM GO AWAY IT WOULD ALL BE BETTER.  SHE SAYS THAT FIBRO. DOES NOT CAUSE ANXIETY.
I NEED A NEW DOCTOR, THERE IS A SHORTAGE WHERE I LIVE AND IT IS HARD TO FIND ONE WHO WILL TAKE ON NEW PEOPLE.
WHY...WHY ...WHY
I AM JUST SO ANGRY.
MORE CRAP TO DEAL WITH.
LORD HAVE MERCY ON ME......PLEASE


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Reply
 Message 2 of 3 in Discussion 
From: MSN Nicknameamar-4Sent: 7/8/2006 3:47 AM
Hi Linda
I have fibro myself. Diagnosed in 1993. One of the doctors I went to see before getting the diagnose had pamplets on fibro hanging outside her door at the hospital. But first thing she said to me were "Don't even think you have fibro cause that is only lazy peoples excuse for not working." About a year after this meeting I were diagnosed with fibro on another hospital. As you surely know by now the anxiety comes from not knowing what is wrong and from ignorant doctors who labels us with all kinds nervous illnesses beause they dont know or dont care to study fibro. So offcause we get anxious and nervous as we wait and wait until we get a diagnose. Dont let her bring you down. Now you know what is wrong with you and now it is time to move on. Unfortunately our lifes wont be the same afterwards as it were before we got sick. Now you need to find out what you can and can not do. It is a crazy illness and it will change as  time passes. I found the biggest problem were that people couldnt see I were ill so they couldnt accept I had limitations. My energy goes down fast. I used to walk 10 miles with my dog to visit my grand mother and back again the same day. But now I can hardly walk 1 mile. Someone said to me that if I had had a broken leg people wouldnt assume I could walk but because they couldnt see the pain I had in my muscles then noone accepted it. And I have to say neither did I. I would go on until I could barely drag myself on before I gave up. So instead of smal breaks to ease the muscles I had to wait very long before I could walk on. Now I can manage to use some energy and still keep some back so I can get myself all the way home. Now I dont know if you were prepared for the diagnose of fibro but if you were not then give yourself time to accept it, Now you have to learn to think different than before. Now you have to put yourself in first place when it comes to what you can manage and what you cant. I have learned the hard way that if I overdid it one day I would surely pay for it the next. You have to find your level of what you can do so you dont lie in bed the next day in agony of pain, and you have to learn to close you ears to what people might say. You are the one getting the pain so you have to set the levels. One last thing if you can dont start using painmeds it is a never ending slight. I know I could do more if I used painmeds but the sideeffects are to risky. Once you start those you will eventually have to get them stronger and stronger as time goes on. And you will get hooked on painmeds and they are no good to your body. Neither the liver or your kidneys will be happy. If you are in to much pain use the ones you can get over the counter and only as a last way out. When you have found your level of what you can do then maybe you dont need it beause you can make sure you dont over work the muscles. I use pepermint oil which helps my muscles relaxing and if people cant stand the smell well to bad for them cause I need it. If you have any question feel free to contact me at [email protected] . I am so sorry you have gotten fibro aswell. I hope you find a really good doctor who are willing to read up on fibro so he or she can support you in the best way.
Love and hugs Amar        

Reply
 Message 3 of 3 in Discussion 
From: MSN NicknameCYLENE5523Sent: 7/8/2006 8:24 AM
Linda honey I am so sorry that you are not getting the support that you need from your doctors.  It is just so unbelieveable that today, with modern medicine, doctors still act like they live in the stone ages.  Sorry but this last doctor doesn't even sound like a doctor.  What kind of office does she run there?  I wish I could get you the help that you need.  I do pray that ou will soon and get some answers for your problems.  I posted a lot of information about fibro and there is more in our links board.  I am not sure if you had the chance to read it, I think it would help you to get a better understanding.  Of course, anything that amar tells you will be of great help also.  She will be a great one to get do's and don'ts from.  My prayers are with you honey.