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i finally get a good night's sleep, nearly 8 hours and get up to get a shower, using my bath/shower seat and now i have the shakes, completely physically exhausted. And i haven't even started my day yet and today is supposed to be a BIG grocery shopping day bcs. the house is getting empty and I'm the one supposed to do it. ARGH!!!!! well it's getting put off, mutter mutter mutter..... and by the way I still have to make entries 3 to 4 times before i get a window that will actually post my replies. I try to remember to write it first on Wordpad so I don't have to retype every time because that's too much for me. |
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Goodness Tinsel sounds like you were having a hard time girl. I certainly hope things are better for you today. My philosophy is there is always tomorrow, unless of course there isn't! ha It can always wait, can't it? I don't know why you are having that much trouble posting. Do you get this open and ready to post, then you send the message and it disappears? Now I have had that before also. Have no idea why that is. I was having a difficult time getting this page first, then I started pushing and holding in control as I clicked on reply. Works every time now. I do hope that ends for you. I don't want you worn out kiddo. If it gets on your nerves or becomes to much, just pass on it. Don't put more stress on yourself honey. |
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I click on the little Reply button and up comes the window and sometimes it has the blue 'e' in the corner and I type in a message. Then if I add emoticons the yellow triangle with the exclamation point in it appears and nothing will post and nothing can be copied off the message, basically it's lost in a frozen window. I have learnt not to add emoticons but sometimes even with just the blue 'e' in the lower left hand corner, when I press 'send message' it THEN changes to the yellow triangle and again I'm scr*wed. It's exhausting. Today I'm taking no chances and typing all replies on Word pad first so I can then just keep copying it into reply windows until one of them works. There's always a way eh? As for my health, I admit I don't have a ton of patience with it. Not right now. I put up with so much and I get so bored sitting around/lying around so much, too tired to read or watch tv at times. CFS sucks and that's all there is to it. I get some better days and get stuff done but the ones where I'm immobile sure do drag. I'm relieved that yesterday I finally beaded the necklace I've had planned for 2 weeks. So long as I don't expect to accomplish any plans right away or even on the same day I seem to do good. The length of time it takes to do things really annoys me. I'm a go-getter by nature and hubby being a king procrastinator, the house is way shabby now because I used to paint it. To paint it now...my spirit is willing but my body may not cooperate at all. I just find it discouraging...how much I have to scale back my plans, over and over again. I know others do too. It's just hard right now. To want to do so much, just what I did even months or a year ago, not what a healthy person would. I can tell you one thing, wow did I take my body functioning well for granted. I sure don't any longer. Is that progress? |
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Girl I am a little confused about your posting and this little blue "e" and then the yellow triangle. But as long as you know how to remedy it all and get your post made, good for you. I am so sorry you are having such a rough go with your body ignoring what you want and need to do. I sometimes would very much like to just change bodies with my daughter for the day so I could do so much. But I wouldn't want her to suffer thru the pain and agony I deal with, so I certainly wouldn't be able to deal with that. It is so amazing the difference in just one year right? I am sure most of us take our bodies for granted. What we were able to do when we were in better shape, well, it was just natural, huh? It is ok to think back when it was easier to walk up the stairs or vacuum the living room, anything. Now it is almost impossible to do that. I do hope each day things will get somewhat easier for you. Take care of yourself honey |
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Thanks sweetie. I'm doing my best. I'm typing in that reply window right now and the little 'e' in the lower left margin with "done" beside it suggests this might post first time. Hope so. I agree we can look back but then must look at all we can still do. And sometimes being unable to do things I used to has pushed me into other things I've never tried, so it's all a voyage of discovery eh? TC |
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