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| | | From: Grama Deb (Original Message) | Sent: 10/19/2008 1:52 AM |
Hi I haven't posted for a while. When I had the nerve conduction test on my feet and the new neurologist stated that I don't have neuropathy in my feet I just couldn't believe it. I have had this and the symptons for 2 years now. I am so afraid that his diagnoses is going to kill my chances for SSD. My bad back doesn't warrant enought wrong with it to qualify me either..... Too bad pain doesn't show up on xrays. I got a letter from SSD yesterday and they have asked for the 4th time the same reports from my doctors that I sent over and over. They have 90 days to make a decision and they gave me 10 days to get this together. I am so discouraged. I haven't left the house for more than a week. I don't take calls or make them. I am just plain tired. I am hoping the meds for the fibro kick in soon. I really do think about you all everyday I just don't post, love grama deb |
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| | From:  CyndyK2 | Sent: 10/19/2008 5:30 AM |
Deb, make absolutely CERTAIN your doctor is on board with you getting SSD; if he isn't saying you're disabled and shouldn't work, SSD isn't going to say you're disabled and can't work, either. My sister was finally approved for SSD recently, and she's had a bad back for years so it CAN be done; don't give up trying. Double-check everything your doctor fills out, and if you don't agree with something, ask about it! You know your body better than anyone else.
Cyndy
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Cyndy, Thanks for the encouragement. The funny thing about this all is I have two doctors that say I can't work. It is SSD that keeps sending me to their doctors that say I can work. Ten minute appointments and they have a huge part of the decision making. I have an appointment on Mon with a podiatrist since mine just happened to retire in the middle of all of this. Maybe he will read the nerve conduction test differently than the neurologist. $3,000 dollars for a nerve and muscle test just to have them say I don't have issues. I wish they could feel the way I do every single day. Thanks so much for the note I really appreciate your concern , love grama deb |
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| | | From: Dan | Sent: 10/20/2008 12:10 AM |
Stick to your guns, hon. They never make it easy. There's too many people who try to defraud the system. Just remember when you see those doctors take your pain chart with you, and don't go in there looking like a million dollars. Go in there looking like a woman in chronic pain. It makes a difference. Like you said, they only take ten minutes with you. And if you look OK, they'll say you are OK. They don't read the charts. They just look at you. I hate to say this, but I suggest that the day before a doctor's visit, do something that you know you shouldn't do. Then don't take any pain meds before the visit with the doctor. Oops. I didn't say that, did I? Heh, heh. I may have to delete this post. Heh, heh. Hugs and lots of love, Dan |
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Dear Debbie, Please don't give up. I live in Alberta, Canada and was turned down for my pension the first time that I applied for it. I had a certain amount of time to appeal the decision and wasn't going to at first. It was my friends and family who changed my mind. I wrote in great detail what it was like to live my life for a day, including all of the dirty stuff about the constipation, diarhea, everything. I also told them that I could provide notes from my friends and family who see what it is like for me everyday. I don't think that the first time, they even really looked at my application. They totally ignored my fibromyalgia and made their decision based entirely on my osteoarthritis. The decision was turned around and I have been receiving my pension ever since. They even gave me back pay to the time I first applied. They said that they didn't realize how bad my fibro was. It also helped that I did find a doctor who would finally listen to me instead of just prescribe more pills and therapy which didn't help. Keep your chin up and keep fighting. |
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Thank you so much for your kind words. This fibro disease is so tough. It seems like each day I have new and different symptoms. Today for the first time I could barely get out of bed. It took everything I had. I have never had problems with my hips but today I can't sit or stand without them hurting. I had to go to a new podiatrist because mine retired. He took about 10 minutes with me. My neurologist hadn't sent the report from the nerve conduction test so he had nothing to go by. He thinks my arches are falling and that is what is causing the foot and leg pain. He wants to make inserts for my shoes. They will be the fourth pair. Each doc thinks theirs are the best. I can't afford them.... He had no other ideas for me. It was a total waste of my time. I try not to get discouraged but today I just don't care about anything. Thanks again for your help, love grama deb |
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Connie a2. I am so sorry I didn't even ask how you are doing. I apologise. How are you. I hope that you are having a good day today, I will be thinking about you, love grama deb  |
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