I have after a year finally am going to have the GI Doctor go in and do a Electroultrasoundscope done I think thats what it is called....but during my visit with the Gi Doctor ....she was consulting with some other doctor about me and he comes into the room condesending(@#%hole).....says some porphyria's don't even show up unless your in an attack.......I reply yea......and he says back so what of this porphyria thing???his tone all pissed off cause I have this rare disease.......in other words he might have to learn something.....then he starts tearing into my pain meds like a thats alot of pain meds what do you need all those pain meds you take.......Icorrected him and let him know that my lyrica and cymbalta and trazadone all deal with pain so what's his point......I was so frustrated......I am going to complain about him.....I have to meet with the anthesialogist cause he needs to go over what he can use to put me under......when we have the procedure done......they said I could be kept in the hospital cause my pancreas might not like what they did....mainly cause it's inflamed they can tell by feeling my stomache and where I say owe.......it's just frustarting these doctors......thats why I want the genectic test done on the DNA so I can shove that in his face when he says so what of this porphyria..........Dale
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