Gosh but it's hard to believe it's Saturday morning already!!  Time has most definately flown by this past week for me!  You must have needed that sleep, dear lady, or you wouldn't have slept like that.  You another one that's a pro at burning the candle at both ends.  Sometimes I swear I'm the President and CEO of Burning the Candle At Both Ends, Inc.  You'd think we would all learn, but we don't. We just keep pushin' our luck...LOL!! 

I'm glad you woke up and were able to comfort Jake. Yeah, if he's following commands then he's probably alright.  One of my very best buds when I was in high school had epilepsy and it got to where he had grand mal seizures almost everytime he turned around!  He finally dropped out of school and got his GED through home schooling.  Back then, it was pretty hard to find someone to home school you, but his parents were bound and determined to do it.  He's no longer with us, but I'm sure he's much happier where he is now.  At least he doesn't suffer so anymore. 

Ya know, sometimes I'd like to just scream bloody murder because my body doesn't want to cooperate with my and do all the things that I used to be able to do.  Now and then it takes me awhile to remember that I'm far from a spring chicken and that I need to slow down and let others do stuff, but most of the time I still push myself to the max and then pay for it in the long run.  I try really hard not to let stuff bother me, but it becomes a battle alot of the time with me.  I get really frustrated when my hands, or my eyes or my legs or any other body parts don't want to work right.  I finally threw some crocheting on the floor yesterday and it's still laying there.  My fingers just would NOT move right and I was getting really pissed at myself.  After I settle back down I see how silly I've been, but it will get to me again, I'm sure.  I can have the patience of Job with others, but close to none with myself most of the time. 

Yes, Darryl seems like a very nice guy.  I was glad to see him jumping right in there and posting with the rest of us.  I still feel pretty guilty about "the other one" but I'll get over it I suppose. 

So, you want to research Myasthenia Gravis huh?  Here's a couple of places to start at:  myasthenia.org and mda.org.  Not being in remission will not automatically put me in the hospital dearheart, so don't be concerned.  It just slows me down.  It's a neuromuscular disease that falls under the Muscular Dystrophy "blanket."  Our muscles weaken extremely easy sometimes.  Some folks respond quite well to the various medications that are out there and others don't.  There is no known cure for it, but there is alot of promising research going on.  Knowing your body and how it responds to stress is a big factor with MG.  Stress can put an MG'er in the hospital and on a ventilator in the worst scenario.  The docs all suspect that I've had this since I was around high school age, but it just wasn't diagnosed properly.  Back then the docs said I had lazy eyes and that exercises would help them.  well, those exercises only made things worse and the docs, pretty much, gave up and labeled me "too lazy to do the exercises needed to strengthen her body." I wouldn't have known now that I have MG if it weren't for a neurosurgeon I was sent to for a consult on some major back surgery.  He's the one that suspected MG from the very git-go of my visit with him.  He said that my back was a mess and that surgery would probably be impossible at this late date, but referred me to a neurologist who specilizes in MG because he was so positive that I had it.  He was right too.  The receptors at the neuromuscular junction in you don't transmit the acetocholine (sp) your muscles need to work properly with MG.  That's about the easiest way to describe it for me. I seriously doubt that there are any 2 cases of MG that are alike.  Everyone's muscles are different in how they respond to the messages sent to them.  Stress and being tired are kinda like "enemies" to someone with it.  I've had plasmapherisis a few times and it does help, for a short while, but I've never gotten back all of my muscle strength and abilities.  Probably never will, but I've found other ways to accomplish things.  I fought tooth and nail when my docs wanted me to get an aide, but I finally gave in and did it.  I felt pretty useless for a long time, but have kinda grow used to having one now.  I know I frustrate her by doing alot of the stuff I'm supposed to let her do for me, but she understands where I'm coming from and doesn't rub it in too hard when I begin suffering for doing too much...LOL!  Don't worry about my baby when I have to go into the hospital.  She and my son have a wonderful bond between them and he stays here with her or he will take her to his place.  He's been known to sneak her into the hospital a few times.  He will have his fiance "guard" the door to my room while she's out of her carrier.  LOL!  We got caught one time, but she charmed the nurse almost immediately!  It was like she knew she had to win that nurse over FAST or she was gonna be outta there.  I don't think the nurse ever said a word to anyone else about her being there that night.  She's really a very sociable bird too!  Loves attention and will "love up" on you if she thinks she can get away with it.  I don't think I've ever come upon someone that she hasn't been able to charm.  She's quite the case I tell ya. When I finally got home from my last "visit" to the hospital she was EXTREMELY protective of me.  She didn't want to leave my side and was usually sitting on or with me.  I wasn't even in the front door and she was squawking "I want out!  I want out! I want out!"  My aide sat down my stuff and opened her cage while I sat down in my recliner and she scurried right over to me.  She wouldn't leave my side until it was time to go to bed that night.  When I initially got her, she was a gift to my son.  She loves him alot and is really good for him, but I'm her "mama."  He and his family will have her when I pass on so he keeps a good bond with her.  That way the transition will be easier for her. He knows our daily "schedule" so I'm sure she will be fine when it's my time to go.  Gosh, I could ramble on all day long to you I think.  I don't usually feel at ease discussing MG with others, but I've not got any misgivings about discussing it with you.  If you have any questions, please feel free to ask.  It's sometimes the easiest way to learn about stuff like this.  I am not happy that I have MG, but I am happy that it's me and not some young child that still has alot of life ahead of them. 

Yes, I think we've broken records when it comes to our many postings....LOL!  We've just "clicked".  simple as that!  I'm going to miss this next month, but I'm sure I'll enjoy writing to whoever my partner will be.  I need to return a call to Puzzler this morning and I'll mention to her that she needs to sign-up for the July Buddy Chatters and see if she will do it.  She's alot of fun and a very supportive, loving friend indeed!  Maybe we will have to have a contest and see which chatters can top our message count!!  LMAO!!  We both love to talk so we cannot be beat!!

Hun, you take care and I'll yack at you in a little while.  I really need to get some breakfast made for Ms. Chickie and me.  Take care and many blessing to ya lady!

Much love,

Moki  

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