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| | From:  Myponi1 (Original Message) | Sent: 2/16/2006 8:47 PM |
Hello Everyone,  I am going to try to make this short and sweat and not a novel, which I usually do ..lol. I started with nerve damage to my left hand, which was RSD, and it spread to my intire left side. I had the spinal cord stimulater put in.. With really bad malfunction problems..Ugh well.. I had the surgery to remove it and then.. The rsd now has spread to my right leg, and top of my back! Not good at all really? My DR seems to think I now also have fibro? I am pretty much home bound these days. (Sigh). I really look forward to getting to know each of you. Sincerely, (myponi1) |
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| | | From: Dan | Sent: 2/16/2006 11:53 PM |
OMG, Lori. RSD over that much of your body? That's awful!!! RSD is also called CRPS, (or as we like to call it CRaPS  ). LOL CRPS stands for Chronic Regional Pain Syndrom. And we all think that it's the CRAPS. <Grin> There's quite a bit of information on RSD or CRPS over on the left. If you have questions, please let us know. Lots of love and healing hugs, Dan |
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Lori, I sort of have a similar problem as you, with regard to the nerve damage to her left hand. I have radial tunnel syndrome which means that my radial nerve is impinged between something. I think it is stuck in the adhesions from the surgery I had to "release" the radial nerve. It back fired on me. Fortunately, I've not had my nerve pain any other place than my left extremity. I am sorry that yours progressed as it did. We have several members here that have RSD. We have one gentlemen that has had it for many years and we also have a lady that has a really bad case of it. Hers is so bad that she is unable to come to the boards and visit us very often. She is really having a hard time getting hers controlled. She was only diagnosed with it over the past year or two. Her name is Anne-Marie, in case you happen to see her on the boards, you'll know that you two have something in common. Which reminds me that I need to email her and check on her. Again, welcome to our group. I hope you find the comfort and support that you need. tomcat asst co-mgr |
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Howdy Lori- I, too, have RSD (or CRPS - take your pick).... Mine started in the right upper extremeties and was due to a nasty training accident while I was in the Army. Now, my RSD has spread to just about my entire body. This sometimes happens and sometimes the RSD will go into remission. Read the info on RSD (CRPS) and you may learn a lot. Also, it really helps to keep a good sense of humor about the RSD.... I've always had a warped sense of humor, so I manage to get by. Harvey |
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