| I am so tired of fighting this battle alone. I've had seven major abdominal surgeries and am in a great deal of abdominal pain, radiating to my back. I've been on a variety of pain meds, but for now it's methadone, fentanyl and oxycodone. My pain doctor and my husband are definitely NOT supportive of this regimen and want me off of it, to the point of wanting me to go into a 45 day in-house program for drug addicts to get off of it. I got off Neurontin in early January because it was causing me to jerk wildly and just getting off Neurontin caused my pain to increase. I haven't shared that with my husband. The doctor has also pressed me to have a pain pump implanted but I am scared to death of that because I've had infections with every surgery I've had, bar none and I definitely don't want an infection in my spinal fluid. I could fly to Germany for one more surgery that a doctor in Pennsylvania thinks would be the best bet for reducing my pain markedly, but my husband is against that. So I'm between a rock and a hard place. So . . . I'm just looking for a little positive caring support and I hope I can offer that to others in the group, too. I chose toughhummingbird for my name because they are tough little birds and can recover from a lot of things. Talk to me, folks. Thanks, THB (toughhummingbird) |
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