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Dealing with Chronic PainContains "mature" content, but not necessarily adult.[email protected] 
  
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  Dealing With Chronic Pain  
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MEMBERS BIO : My Story
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 Message 1 of 4 in Discussion 
From: MSN NicknameTwentyfoursevenmom  (Original Message)Sent: 9/13/2004 7:24 PM
OK-gonna try this again and hope it's posted in the correct place. I deleted the last one, cause I thought I put it in the wrong place.
Here goes, I'm 43 , married with one BRILLIANT son, Adam  and 6 purrfect cats/kittens: Tomtom came in '98 and when I brought him home from a church meeting, I said," Adam come see what I got!" He thought Tomtom wasn't real, a joke, a stuffed cat. It is such a funny story to hear Adam tell. But T. is yellow with white belly and paws and has asymtomatic Leukemia. He hasn't been sick from it but the other cats could get it if not immunized, so they have to stay in Adam's room for 2 months. One set of kittens, Rufus and Zelda (Baby Z, I call her) just got out and the month younger kittens Oscar and Willow have 4 more weeks to go. Lovey is all black and fluffy with beautiful amber/gold eyes and my baby, she snuggles me at night. She is 1 1/2, so she loves the new kittens. Rufus and Zelda are brown black and grey shorthair tabbies. Oscar is white shorthair tabbie with yellow and Willow is a sealpoint siamese with a touch of tortie and tabbie, obviously not purebred. I got them from Animal Control. Rufus and Zelda came from a rummage sale (free) and Lovey was found with her brother and sister at Manners Park in the hottest part of the summer. We just couldn't leave the little flea-bags there, it was soooo hot and there was no water for them.
So as you see I'm a sucker for cats and for Barbie dolls, new and vintage and all kinds of clothes, clothes, clothes for them. I quit counting when it went over 200. Some are in boxes for display, but many are play-with dolls. I often don't feel well enough to play with them or the kitties.
I've had lower back pain off and on forever, but it finally went non-stop around Thanksgiving of '98 and since then I've fought the battle of looking like a seeker, when they didn't really find anything wrong.
Finally a MRI found some arthritis, degenerative discs and stenosis of the spine. I started at a Pain Clinic and the first epidural pain block worked, but it quit 6 weeks later and the 2 I had after that didn't work at all.
I went to another Pain Mgt Clinic a friend recommended and they did TONS of TPIs ( felt like a pincushion for awhile) and some other epidural like procedure, but none of it worked. They made me feel like I had to go through all of that to get any meds, tho. Now they say fibromyalgia on top of the rest and I take Panlor SS, 3X day with Tramadol, but it only keeps it to a dull roar.
I feel lazy and depressed 'cause I can't get everything done housework wise plus my Mom is here in hospice care with emphysema and my brother won't help me, in fact, I kicked him out for belittling me and my son. He's such a jerk. We are supposed to get counseling the hospice recomends to help us 'communicate', but I can't wait to see what the counselor says after I fill his ear!!
Anyway, I used to substitute teach, before mom got so bad that I can't be gone all day, she can't get her own food anymore, so sometimes I feel trapped and want to run away.
I'M JUST GLAD I FOUND YOU ALL WHO UNDERSTAND!!!
Lots of love and painfree days to you all,
Kelly


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 Message 2 of 4 in Discussion 
From: DanSent: 9/14/2004 1:42 AM
Hi, Kelly. 
 
Gosh, so young to have such problems. 
 
I'm Dan, one of the managers here.  Welcome to the family.  Everyone here understand about half of what you're going through.  We all understand the pain part. 
 
But the stress of caregiving is a whole 'nother bag.  Most caregivers feel trapped.  No matter how you love the person you're being a caregiver to, you feel trapped by the constant need to be there for them. 
 
There's a caregiver's forum, I know associated with the CDnD group. (Chronic Disease and Disorder group.)   I don't recommend the pain forum there, but I do recommend the caregiver's forum  Say hello to Rose for me if you check that out.  She's a remarkable lady if she's still the manager of that group. 
 
Meanwhile, there's a whole lot of information over on the left.  Look through that and if you have quesitons, please feel free to ask.  OK? 
 
Welcome again. 
 
You're in my prayers, hon. 
 
Lots of love and healing hugs,
 
Dan

Reply
 Message 3 of 4 in Discussion 
From: MSN NicknameDoofiebutt421Sent: 9/15/2004 4:35 AM
WELCOME KELLY.....WELCOME TO THE PAIN PARTY... where no  one leaves......
So sorry you're in the position you're in now, but we try to have a grand old time here before the  hulking devil of pain controls us for a day or two so bad that we don't even want to get on this 'puter.
Kinda like the song....HOTEL CALIFORNIA,(ya know, some how that doesn't even look spelled right)...but you get my drift...right?

Reply
 Message 4 of 4 in Discussion 
From: MSN NicknameKatie437Sent: 10/20/2004 5:38 AM
Hi Kelly, So sorry that you have gone through so much.  Being in pain and having to be a caregiver for someone else has to be realllllly hard.  I am glad that you are here.  It is nice to have people that go through the same thing.  It amazes me what goes on here, it really does.  You can see people REALLY helping each other every day. 
Can't wait to get to know you better.  Take care and welcome
Hugs,
Katie

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