When my SOM symptoms began: July 2006
When diagnosed: Properly Diagnosed January 2007
Type of doctor: Neuro Opthamologist
SOM eye - Right or Left: Only Right eye
My symptoms: Shimmering, Shaking, and sometimes double vision
Symptom triggers, if any: Migraines, Lack of sleep, working out hard
Wear glasses? What type/kind: No, I had lasik surgery about 8 years ago to correct vision
Is SOM eye weaker or stronger than "good" eye?: The Same
Treatments for SOM: Prescription meds: Yes or No: Yes
Med name, dosage, how long, results 1. Tegretol 100mg, 2x's a day, stayed on it less than a month b/c the side effects were awful. Tired, Tired, Tired
Med name, dosage, how long, results 2. Neurontin, ?? mg, no change
Herbs/Vitamins: Ocuvites with Leutin (2 months, no change); Fish oils (omega 3's - no change), Vitamin B-12 (3 months, no change), Magnesium (500mg per day - no change)
Accupuncture. Type: Yes
Accupuncture. 12 visits (NO CHANGE)
Massage. Type: Deep Tissue
Massage. How long, results: Relaxing, but didn't alleviate
Chiropractic. Method/type: Neurological Chiropractor
Chiropractic. How long, results: 10 visits. First few visits saw a change, but I think the eye just went into remission, b/c subsequent visits didn't make a difference)
Surgery. Type: NONE: Think about it, but don't know enough, and I would rather have the twitch than double vision or prism glasses. So I guess it isn't bad enough, although my head predominantly leans to the right all the time.
Botox: Tried botox for my migraines, but SOM started 1 month after Botox injections. Hoped they were linked, but all specialists say NO>
Other conditions I have:
Symptoms. How long. 1. Severe migraines 16 years.
Used to be stuntwoman, so don't know if I hit my head one to many times.
Possible connection(s) to SOM: All
Current SOM status: Right eye only. Daily twitching and sometimes double vision. If I focus on the "true" object, then over a period of 10 seconds or so, the eye adjusts and brings the vision back in line.
Current age:34
Gender:Female
Additional thoughts:
I would like to know if doctors can see your trochlear nerve in an MRI, and it is incredibly frustrating. I can't take driving jobs for stunts anymore b/c of the vision, and I can't pay tennis anymore b/c I can't focus. Very frustrating.
How I found this support group: Web site search
Have you shared this group/site with your doctor/doctors?: no