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From: MSN NicknameNicolaH2  (Original Message)Sent: 3/21/2008 5:32 AM
When my SOM symptoms began: July 2006
 
When diagnosed: Properly Diagnosed January 2007
 
Type of doctor: Neuro Opthamologist
 
SOM eye - Right or Left: Only Right eye
 
My symptoms: Shimmering, Shaking, and sometimes double vision
 
Symptom triggers, if any: Migraines, Lack of sleep, working out hard
 
Wear glasses? What type/kind: No, I had lasik surgery about 8 years ago to correct vision
 
Is SOM eye weaker or stronger than "good" eye?: The Same
 
Treatments for SOM: Prescription meds: Yes or No: Yes
Med name, dosage, how long, results 1.  Tegretol 100mg, 2x's a day, stayed on it less than a month b/c the side effects were awful.  Tired, Tired, Tired
Med name, dosage, how long, results 2.  Neurontin, ?? mg, no change
 
Herbs/Vitamins:  Ocuvites with Leutin (2 months, no change); Fish oils (omega 3's - no change), Vitamin B-12 (3 months, no change), Magnesium (500mg per day - no change)

Accupuncture.  Type: Yes

Accupuncture. 12 visits (NO CHANGE)


Massage.  Type: Deep Tissue

Massage.  How long, results:  Relaxing, but didn't alleviate

Chiropractic. Method/type: Neurological Chiropractor
Chiropractic. How long, results: 10 visits.  First few visits saw a change, but I think the eye just went into remission, b/c subsequent visits didn't make a difference)
  
 
Surgery.  Type: NONE:  Think about it, but don't know enough, and I would rather have the twitch than double vision or prism glasses.  So I guess it isn't bad enough, although my head predominantly leans to the right all the time.

Botox:  Tried botox for my migraines, but SOM started 1 month after Botox injections.  Hoped they were linked, but all specialists say NO>
  
 
Other conditions I have:
Symptoms. How long. 1. Severe migraines 16 years.

Used to be stuntwoman, so don't know if I hit my head one to many times.
  
Possible connection(s) to SOM: All
  
Current SOM status: Right eye only.  Daily twitching and sometimes double vision.  If I focus on the "true" object, then over a period of 10 seconds or so, the eye adjusts and brings the vision back in line.
  
Current age:34
Gender:Female
  
Additional thoughts:

I would like to know if doctors can see your trochlear nerve in an MRI, and it is incredibly frustrating.  I can't take driving jobs for stunts anymore b/c of the vision, and I can't pay tennis anymore b/c I can't focus.  Very frustrating.
  
How I found this support group: Web site search
  
Have you shared this group/site with your doctor/doctors?:    no 



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