MSN Home  |  My MSN  |  Hotmail
Sign in to Windows Live ID Web Search:   
go to MSNGroups 
Free Forum Hosting
 
Important Announcement Important Announcement
The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More
Superior oblique myokymia[email protected] 
  
What's New
  
    
  ♥Home ♥Guidelines  
  •HOW TO JOIN US  
  °SOM Q&A, Page 1  
  °SOM Q&A, Page 2  
  °Glossary  
  ♦HIPAA Regs  
  ♦Copy & IP Rights  
  ♦COC & TOU  
  ♦Linking Guidelines  
  ♦Internet Safety  
  •How to sign-in  
  •How to post  
  •Hide your e-mail  
  •Create an album  
  SOM History/Data  
  MyHistShortForm  
  .::Messages::.  
  General  
  :Meds-Our Data  
  :Chocolate  
  :WonkyEyeComedy  
  •Vision in the news  
  •Meds part 1  
  •Meds part 2  
  •Abstracts  
  ◄SOMPeople Links  
  ◄Med Links  
  ◄Natural Health  
  ◄MemFAVlinks  
  •Wishful Thinking  
  •SOM Books  
  •SOM Recipes  
  Pictures  
    
  site directions  
  Site images Part 2  
  Jeanie's World  
    
  Jen's World  
  photography by kel  
  Time Zone Help  
  Pete's  
  Lena  
  Acronyms/Emoticons  
  Juds' Kitties  
  Site images  
  •My SOM History-Archive  
  ◄Treatments I've tried  
  ◄Herbal, alternative treatments  
  ◄Other physical conditions I have�?/A>  
  "E-Mail hackers know all about you"  
  Protect your e-mail and other personal info  
  "Hacking passports via 'phishing'"  
  MVD info  
  Using BCC  
  ◄Patches & Occluders  
  •Member's articles  
  Abstracts: Visuals  
  Abstracts: General  
  Abstracts: Case reports  
  Abstracts: General ophthalmology  
  Abstracts: Surgery  
  Abstracts: Botulinum Toxin  
  Abstracts: Medications  
  Abstracts: MRI  
  Abstracts: MVC/MVD  
  Abstracts: Alternative Treatments  
  SOM History Archive  
  
  
  Tools  
 
General : just a thought
Choose another message board
 
     
Reply
 Message 1 of 13 in Discussion 
From: MSN Nicknamepinksandels  (Original Message)Sent: 10/17/2008 4:18 PM
I recently had a revolation.  I don't know for sure yet but I'm beginning to wonder, if my SOM has anything to do with my stiff neck and the weird pulling sensation I have in my right lower rib cage. 
I never put it all together until recently.  My SOM symptoms started about 3 years ago.. This dig bat of a neuologist put my on mestanon because he thought I has myasthenia gravis... The mestanon really messed me up,. ( No pun intended) Any way while I was recovering from the horrible side efects of the mestanon I noticed my rt rib cage felt funny, like a pulling/ twitching muscle sensation.  My SOM eye is my right eye.  The other strage thing is I sleep exclusively on my right side and I have for about 13 years.  I go to sleep on my right side and wake up that way in the AM...I do not move much during the night.
 
I have switched side of the bed with my husband and it may be all in my head but my rt side and my eye seem quite a bit better.   I'll keep you up dated. 


First  Previous  2-13 of 13  Next  Last 
Reply
 Message 2 of 13 in Discussion 
From: judsSent: 10/17/2008 4:55 PM
Uh, yeah.  A huge, resounding YEAH, baby!!!!!!  Or, at least a murmuring maybe.   Your experimentation with your sleeping position might prove interesting, but I'm guessing that your SOM is a likely candidate for your discomfort.
 
Most of us have a subtle head-tilt which throws your entire upper body out of whack.  Mostly it gives us a pensive appearance. You know, like we are paying such rapt attention to what someone is telling us, or what we are seeing, that we end up canting our head to the side like a curious basset hound, huge, ropy strand of drool and all. 
 
It might be worthwhile to pay attention to your head position for a bit.  I had my hair cut on Monday and had to consciously keep my head in a balanced, upright position.  A few decades of having this head-tilt means that forcing my head to a normal position feels weird and becomes painful if I try to hold it for any length of time.  Go plant yourself in front of a mirror and see if you can replicate what I've described.  Bet you a nickel you have a head-tilt.

Reply
 Message 3 of 13 in Discussion 
From: MSN Nicknamemad-eye-annieSent: 10/17/2008 5:27 PM
True, that.  I wonder if I will ever have strong and hearty muscles in the left side of my neck again.  Look at photographs--and note where your head is.  Mine (pre surgery) is almost exclusively trying to lie down on my left shoulder.  I look like a curious bird. It takes conscious practice to not do that now that I don't have to. Never linked the chest msucle strain I sometimes feel sharply.  Ah ha.  Thanks for the insight.

Reply
 Message 4 of 13 in Discussion 
From: judsSent: 10/18/2008 1:00 AM
Thanks, Annie.  If you think about it, tilting one's head all (or most of) the time can't help but affect many of the muscles of the upper body.  I really don't know if or how one undoes the injustice and assault done to all of those muscles.  I often have pain in my chest, but it takes some reminding to myself and my doctor that it is because of how SOM misused the muscles, and not due to my heart murmur.  That said, women of our age really shouldn't ignore any kind of chest pain.  We have heart problems just as frequently as men do.  I would think, as a fellow surgical member that a year is not nearly long enough to readjust, doncha think?

Reply
 Message 5 of 13 in Discussion 
From: MSN NicknameTonyR004Sent: 10/18/2008 3:00 AM
Lucky is what I am. I never have to lay my head on either shoulder. So lucky is what I am. An occasional backward tilt, looking through my BluBlockers, and a belief that if I focus on the little gremlin that inhabits my tiny SO muscle, he will be so embarrassed, he will have to go live in someone else's head. Sorry if it's yours but I'm going to start the exorcism process. In fact I started in about 1:00pm today and I'm going to continue.

By the way, did you ever notice that we backwoods folk from the midwest really can start every sentence with "So," and end every sentence with, "then."

So how are you feeling then? So what are you doing on Saturday then? So yesterday I went to the library then. So my guitar needs to be tuned then. So do you love me then?

Reply
 Message 6 of 13 in Discussion 
From: judsSent: 10/18/2008 3:41 AM
It's better than anywho.
 
So, fine.
So, coffee in the morning, then work.
So, who would let you have a library card?
So, better get that done before your next gig.
So...

Reply
 Message 7 of 13 in Discussion 
From: MSN Nicknamemad-eye-annieSent: 10/18/2008 3:41 AM
So, have you also noticed that we end our sentences with "and so"?  And we free- form with prepositions. Like, doncha hate it when you go by your friend's for six and she's not even close to ready, and so?  Aw cripes, that makes me so mad, then.
 
I'm not a native.  I moved here (Packerland) in 1973, but I am now a part of the culture.  I go places for a time and stay by my mom's, and get expecially flustrated about things.  Like that pulled twangy chest muscle that comes of having one of those classic head tilts that you read about--bad enough that I realize I pulled the left shoulder up to meet the ear in an attempt to level my gaze to some degree.  It is still such a habit.  Probably I permanently deformed my neck.  No wonder the muscles in the chest are slowly yielding.  And so.  
 
True--any new chest pain ought to be taken seriously.  I ended up four years with a dear friend in the ER one Saturday morning--she felt sick, had a mild pain in her RIGHT arm, and looked awfully gray.  She called me because she didn't feel well enough to drive. Bam  Heart attack.  Totally blocked right ascending artery (I think).  What a shocker.   She's ok now, but she called me instead of the ambulance, and I get shaky when I think of driving her to the hospital with neither of us knowing what was going on with her heart.
 
So, ya Tony, we love you then.          Annie   

Reply
 Message 8 of 13 in Discussion 
From: MSN NicknameTonyR004Sent: 10/18/2008 4:39 AM
So I'm totally cracking up then.

I lived a mile from Packerland when our youngest babies were going off to school. So, somehow we found this neighborhood lady who baby sat for us. So she ended every single sentence with, "and so," then. For real she did.

"That boy is so nice, and so."
"He ate all his supper, and so."
"He forgot to get on the bus, and so."
"What about those Packers, and so."
"Thanks for the hotdish, and so."
"I can't believe that dog bit you, and so."

....and so."

This is way more fun than SOM.

but for a little while today, I had this idea I could hold the demon off. I'm still not so sure I can't. So maybe I can if I can ignore him. If I can remove him from my consciousness. Forget he ever existed. Oh would he be pissed. And I'd be blissed to be able to erase the memory of him and thereby erase him.

Perhaps....

Reply
 Message 9 of 13 in Discussion 
From: MSN NicknameTonyR004Sent: 10/18/2008 4:51 AM
And there's a special story for me about "flustrated." Hey it's a great word. Who hasn't be flustered and frustrated before? But a good friend of mine that I used to work with could absolutely not hear the difference between, "flustered," and "frustrated," which absolutely flustrated the crap out of him. So one day, in a meeting, we put a dictionary on the table in front of where he always sat. (and by the way, he was from International Falls, MN which might explain some of this.) Anywho, we decided to get johnny boy "flustrated," and then act confused about what he meant and have him define the word for us using the dictionary.

It worked, we all laughed, then felt bad, and johnny boy retired six months later. So he ended up happy with lots of money and a pretty wife then. blather...

But I am expecially sad he retired. I need him back to help me figger out what people are saying.

Reply
 Message 10 of 13 in Discussion 
From: MSN Nicknamemad-eye-annieSent: 10/18/2008 3:29 PM
So, he's probably happily eating out with his pretty wife, listening to the friendly waitress ask, "So, were youse ready to order, then?" while you still eke out a living.  Took me years to figger out that waitresses never address you in the present tense.  Also that "Hey" could be freely substituted for "Then" or even added for more verbal thrust.  "So, How do ya think those Packers are gonna do on Sunday, then, Hey?"
 
Truth to tell, I did try for awhile to will the SOM gremlin into peaceful slumber.  I think I thought it worked.  I think I was incorrect.  However, it's a good exercise, and maybe it will actually work for some.  I believe that on certain days, I can will my back to feel better, but possibly that's just the overall good pressure of positive thought.  Either way, it reduces negativity, and one can fall into that pretty easily when SOM symptoms rear up and eveything seems to be tainted by the disorder which also takes over a part of your head, a chunk of your balance, and a feeling of helplessness over this thing.
 
Annie

Reply
 Message 11 of 13 in Discussion 
From: judsSent: 10/18/2008 5:08 PM
If you really want to use a non-invasive technique to help with your symptoms, this one is tried & true, having been used successfully by some of our members.

 
It involves spinning on your head, during the phase of the full moon, whilst humming show tunes.  Companion animals who can hum along are recommended.  Finish with dark & dreamy chocolate and champagne,.  Although it is permissible to substitute with the beverage of your choice, that might not give you the full benefit.
 
 

Another viable option is to print out two copies of this next image, putting one on your refrigerator and carrying the other in your wallet/purse/backpack/national disaster survival kit.
 
 One of our early attempts at symptom control was to wear your official SOM  mumu and have coffee with your companion animal.  Although I do seem to remember that Jeanie had vodka martinis in her mug, with equally good results.
 
 
 
 
 
 

 

Reply
 Message 12 of 13 in Discussion 
From: judsSent: 10/18/2008 5:18 PM
Rats.  I forgot to mention that the spinning needs to be done in the bathtub (empty...for those of you who need the specifics).  Other locations may will have unfortunate results, much too scary to consider.  Shudder.
 
And, the champagne can be the cheap stuff from the grocery store.  It is the combination of the alcohol and the bubbles that is essential for a good result.  Using other bubbly or carbonated beverages will result in abrasions on the top of your head, and the development of coldsores.

Reply
 Message 13 of 13 in Discussion 
From: MSN NicknameTonyR004Sent: 10/20/2008 12:13 AM
Juds,
Were you having a few of those champagnes last night??? It's ok if you were. Like I said, we ought to have a party.

And since the Packers are dismantling the Colts today, smiles all the way around.

And I get lonely for all you folks when you don't post all day...

First  Previous  2-13 of 13  Next  Last 
Return to General