|
1985-ish
|
2000
|
Shimmering, twitching, twisting up to 40 degrees, fatigue, pain, nausea, stumbling, whining
|
Sunlight strobing, stress
|
Right
|
Yes, since age 8-9
|
Weaker and getting worse at much faster rate than my other eye
|
Tegretol, Neurontin, Zonegran
|
Too sedating, no beta blockers because of asthma
|
Chocolate
|
Not currently taking anything, thinking about surgery
|
58
|
Female
|
Juds
|
|
|
|
1983
|
1983
|
Constant shimmering,
double vision,
pain from eye twisting,
eye & and facial fatigue,
whining
|
Staring,
Strobe light,
Looking right,
Stress,
Fatigue
|
right
|
|
|
Tegretol, Neurontin, Zonegran, Topamax
|
Worked briefly, got loopy, quit
|
Head stand in bath tub on full moon.
|
Slight shimmer, much double vision
|
52 today, 53 next week!
|
Female
|
Ms.JB aka Jeanie
|
KEEP Posting! It works best!
|
|
|
2000
|
2001
|
eye twitching, double vision
|
symptoms present all the time with the exception of an occasional calm period
|
left
|
|
|
Tegretol
|
didn't stop symptoms, too sedating
|
|
status quo
|
60
|
female
|
Tissi
|
|
|
|
January 2005
|
February 2005
|
Vision jumps - inability to focus.
|
Nothing concrete yet.
|
Left
|
|
|
Trileptal
|
Perhaps
|
Exersize
|
on/off
|
33
|
Male
|
David
|
|
|
|
2003
|
Not officialy,yet. Mostly self diagnosed. (Neuro said it was caused by earwax!)
|
Shimmering, jumping, double vision.  |
Not sure!  |
Lefty
|
|
|
None
|
|
None
|
shimmering (double vision subsided)
|
25
|
Girly
|
Specialkay951(Kay)
|
Just started working @ eye clinic, hope to get more answers! (and it's not caused by earwax!)
|
|
|
1985 I think
|
1999 - Check out the UK's fast diagnosis (sigh)
|
Wobbling, twitching, twisting and pulling every 11 seconds (double vision) followed by 15 seconds of normal vision.
|
None but tiredness and illness definitely makes it worse. I think I got it when I had glandular fever at 11 years old - my first recollection of it.
|
Left
|
Yes = short sighted
|
Weaker
|
Tegretol
|
Terrible allergic rash so didnt try for long.
|
Sleeping - a good 9 hours EVERY night really keeps the wobble to a minimum.
|
Ongoing wobbling, no remission. Read with right eye only. Drive with head permanently tilted!
|
30
|
Female
|
Jo
|
Keep in contact, it helps.
|
|
|
1999
|
2000
|
Begins with progressive "numbing" of right eye, followed by rapid twisting motion of eye. All results in inabillity to focus,double vision, vertigo and rarely nausea. If symptoms are bad enough, I get intense pain behind right eye. The twisting motion of eye causes a movie-projector-like flickering of vision and in some instances a stacking of horizons (instead of side-by-side).
|
Not sure of all, but definitelly bright sunlight and reflections off of snow. I have never found that stress and/or caffeine affect it whatsoever.
|
Right
|
|
|
Tegretol, Betoptic, Topomax, Neurontin, Zonegran, Namenda
|
Best meds in order: Namenda, Zonegran, Neurontin
|
Dark Chocolate
|
Rare symptoms and mild if they occur
|
40
|
Female
|
Jen
|
|
|
|
Spring 2000
|
May 6, 2005
|
A slight tugging sensation in the left eye which signals an episode in which the eye will not focus for up to 10 seconds...sometimes longer. The right eye struggles to compensate but the only way I can focus at these times is to close the left eye. I regularly experience headaches from the strain of trying to focus. The symptoms began around the same time as I had Bell's Palsy. At that time a neurologist ordered extensive blood work which revealed low B-12 and it was later determined that this was due to pernicious anemia. The doctors who diagnosed my SOM suggested that it may have been caused by the B-12 deficiency but it was unlikely that it was a result of the Bell's Palsy.
|
Light and sometimes movement of the eye. Being sick, overtired or stressed or any combination of these.
|
left
|
|
stronger
|
zilch
|
|
close the eye
|
4 to 8 episodes/minute - constant
|
50
|
Female
|
Zeeada
|
Doctor is in the process of ordering an MRI before considering medication. This will take forever!
|
|
|
1997
|
1999
|
Right eye jumpy and it was difficult to see while driving and using the computer.
|
Stress, stress and oh yea the now ex-wife! Seems as though now that she is gone life is less stressful. The newer improved wife is much less stressful and understanding. Alcohol also triggers the symptoms
|
right
|
|
|
B-12, B multi, Bilberry
|
1000 grams of B and Bilberry work.
|
Spinal manipulation and massage in the c1-c4 area.
|
Remission for the most part (if symptoms act up then I mega-dose with B and Bilberry **** Not recommended until you talk to your physician *****)
|
35
|
Male
|
Jason
|
I tend not to stress over the little things and life seems to move smoothly.
|
|
|
2004 (after a line drive to the head with a softball)
|
2005
|
Vision "jumping", double vision, eye pain, headaches, constant neck pain from tilting my head to the right, bouts of depression and whining.
|
Staring, sunlight, holding my head up straight instead of the tilt, stress, fatigue
|
left
|
|
|
Tegretol, neurontin, topamax, trileptal, dilantin, lamictal, currently taking baclofen
|
Nothing has worked so far, most make me tired some make me agitated and they all effect thinking straight and my memory
|
I wear my eye patch alot cause I get tired of trying to keep my eye closed.
|
Symtoms going strong, currently taking baclofen which is a muscle relaxant, it's helping with the double vision
|
40
|
Female
|
Lisa
|
I'm currently off work on medical disabilty (since April) trying to find a drug that will work. Does anyone know.....is surgery really an option with SOM?
|
|
|
Summer 2004
|
Spring 2005
|
Right eye shaking - intermittent shaking of visual field
Infrequent migraine type visual disturbances.
Migraine headaches.
Continuous upper and lower eyelid spasms (right eye)
|
SOM is sometimes triggered by looking at patterns of lines or by driving for extended periods of time.
|
right
|
yes
|
not that I have noticed
|
none
|
none
|
I close my eyes and it MAY go away for the time being.
|
Intermittent
|
35ish
|
F
|
Tracy
|
My mind is blank!
|
|
|
1993
|
1993
|
A sudden slight twitching of the eye...eventually led to full blown spasms with double vision. My eye doctor had told me it would only last 6 weeks...I had full blown attacks daily for an entire year and then it just stopped. Have had symptoms since, although not for as long a period.
|
Stress, lack of sleep, stiff neck, bright sunlight at times. Also, had an episode after my gall bladder surgery.
|
right
|
Since age 11
|
stronger, my good eye is now my bad eye due to glaucoma
|
imipramine, clonazepam, diazepam, gabapentin, lorazepam
|
imipramine(felt very uneasy), clonazepam(terrible headaches), diazepam 5 mg qhs works very well during full blown attacks. gabapentin 300mg/bid works great to stabilize, lorazepam 1mg/hs to help with sleep works too.
|
chiropractor every 8 weeks
|
remission, with slight quivering at times, stress leads to bad spells.
|
48
|
female
|
kelbel59
|
Of all the things I've lost, I miss my mind the most.
|
|
|
November 2005
|
August 2005
|
Double vision, right eye vision vibrating. Double Vision is not all the time but sometimes bad enough to make me nauseous.
|
None that I can find yet, but I am looking.
|
Right
|
Yes
|
It seems to be weaker but I can't tell. Because of the vision vibratring
|
Tegretol
|
The Jury is still out I just started yesterday.
|
Prayer
|
3 to 4 episodes a day.
|
41
|
Male
|
Troy
|
|
|
|
1998
|
2001
|
started with double vision, then turned to wobbling, twisting and jumping of images in my right eye
|
stress, lack of sleep, bright light, reading for a long time, tilting my head to the right shoulder, alcohol (even a glass of wine), sport like riding a bike or aerobics
|
right
|
yes
|
weaker
|
Tegretal, now Carbamazepin Sandoz (200 mg)
|
sedative, perhaps damaging my liver in the long run, but better than taking nothing
|
sleep
|
Ongoing wobbling, better after Carbamazepin. Sometimes (esp. in the evenings) read with my left eye only
|
43
|
female
|
Lena
|
trying to enjoy life in spite of SOM, hope you'll help me!
|
|
|
1998
|
1998
|
Double vision; vibration and torsion in right eye; severe neck/upper back pain from constantly tilting my head to the left to see straight!
|
Maybe stress and lack of sleep; most of my bouts seem to occur in the spring/fall when I am also dealing with sinus pressure from allergies
|
Right
|
Yes (contacts)
|
About the same
|
Tegretol, Neurontin
|
Minor improvement but significant side effects, so I stopped taking them
|
Plenty of sleep, stress reduction, patience
|
Bouts lasting about 2 weeks, then remission for 3-12 months
|
29 (a few weeks shy of the big 3-0)
|
Female
|
Ashley
|
It is SO nice to interact with people who understand this rare condition. After 7 years, I am very happy to have found you!
|
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