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| | | From: juds (Original Message) | Sent: 3/9/2008 2:56 AM |
A total yawner, but let us share a few suggestions about using this SOM History/Data Message Board. By request from our members, the purpose of this message board is to consolidate some of our more useful information in a single, easy to access location. Hopefully this will be the final incarnation of our information gathering, suplanting the previous history board and recent requests for polls. It is unlikely that this will be the final version, but hope springs eternal! However, please feel free to share whatever you like about your SOM on our General message board. Everyone is encouraged to post their information in both places. When it comes to our experience, it isn't possible for anything we post here or there to be considered redundant, and the more places that we post, the more likely that someone, member or casual visitor, will be able to find the information that might help her/him. This particular thread is also a place for you to reply with your suggestions about additional topics that can be covered here. A few thoughts about posting your information: - Consider how much personal information you want to share. Keep in mind that our site is open and available for perusal by anyone who happens to stumble (yes, an SOM joke!!) upon our site. Some of those persons will have specifically searched for us, but there will be others who seem to have nothing better to do than to cruise the Internet looking for an opportunity to cause mischief, if not harm. Using your real last name, your specific location, your doctor(s) name(s), name of medical facility and the like makes it possible for someone to find and/or harrass you. Same goes for giving out your e-mail address. We are not in the habit of censoring anything that any member wants to post, and we aren't going to begin now...or ever, but remember the risks when you post personal information. Our posting guidelines follow those of MSN's TOU and COC. Additionally, we will keep in mind that we have a slightly higher standard on this site that asks that anything you post be family-friendly. An easy way to think of this is that if something is not appropriate for children to read here, please do not post it. Our site guidelines can be found on our Home Page.
- Since this message board is designed to be about easily accessible information, lots of extraneous information or chatter will make it difficult for someone to find the information that they need. The more frequent the digressions and fanciful thoughts, the less likely that your information will be read.
- This message board is dedicated to information. Please try to avoid responding to the postings of other members. If you want to comment or elaborate on what someone else has shared, please try to take that discussion to our General message board.
- Please continue to revisit the threads as you move forward in your SOM journey, adding information about new experiences.
- If you get off topic, I will do my best to move the information to the appropriate thread.
- These threads are designed to be as comprehensive as possible, which also makes them seem a bit daunting, ponderous even. Participate only to the extent that you are comfortable doing so. I do ask that you try to stick with this board, or come back when you have time to think about what you want to share.
- Participation in these threads is not a requirement of membership, but it is hoped that you will participate as much as you are comfortable doing so.
One last thought (maybe!) is that we need to keep in mind that this is not a medical site and we are not medical professionals. Yes, many of us are, in our real lives, medical professionals of one kind or another. However, for the purposes of this support group, please, please, do not give medical advice. A simple presentation of your own, personal experience (...the facts...just the facts, ma'am...) is preferred. Alrighty, I guess that there is one more, little thing. I have numbered the threads in order of progression. This is more for data purposes and identification & direction than anything else, so feel free to hop around however you please. |
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| | | From: juds | Sent: 3/11/2008 5:48 AM |
It is late at night here, and I'm tired, but you should probably know this little thing. If you are taking your own, sweet time with your replies to these data gathering threads, you will likely "time-out" on your posting session. That means that when you hit the "Send Message", the little pink button on the bottom of your message reply window, you might very well have run out of the time that MSN gives you to reply. So, it might be wise, or even advisable, to left-click your mouse, and backtrack/drag to highlight what you wish to post, then copy (little icon on the top row of this message box, looks like two little pages) so that if you have actually timed-out, you won't lose whatever wise and witty things you desire to share with us. And, when/if you get that dreaded timed-out message, you will be able to pop up a new message reply window and simply paste (little icon on the top row, third from the left, looks like a clipboard with a teeny page) into that new message reply window; then you can send the message just like you intended to in the beginning. I hope that you get the thrust of this missive, because you will be oh so sad when you have to try to replicate all the wonderful things that you tried to post. Best of luck, and write back on this thread if you are still having problems, or e-mail me for help. I learned this the hard and painful way whilst trying to post seven or eight times this evening. Yes, very sad. Send me some cookies and a few pieces of dark chocolate, please.  Or cake. |
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Reply
| | | From: juds | Sent: 3/17/2008 4:27 PM |
Just a reminder that "Alrighty, I guess that there is one more, little thing. I have numbered the threads in order of progression. This is more for data purposes and identification & direction than anything else, so feel free to hop around however you please." There isn't any order in which to share your information. The reason that we put all of the topics here at the same time is so that no one would feel any sense of obligation or frustration whilst waiting until a topic was proposed before writing whatever they needed to write. No need to follow the numbers. No need to apologize.  Just a huge heartfelt thanks for your willingness to share your SOM journey so that other members and assorted SOMers will find the information and help that they need. You guys rock. Luv ya. |
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