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Dealing with Chronic PainContains "mature" content, but not necessarily adult.[email protected] 
  
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  Dealing With Chronic Pain  
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MEMBERS BIO : Angel is my name & this is my life in VA
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Reply
 Message 1 of 8 in Discussion 
From: MSN Nicknamesaphblue27  (Original Message)Sent: 5/31/2007 12:22 AM
Hello, I'm a new lady here. I'm 35, married for 17 years, 3 kids ages 6,8,16. I stay at home doing my chores & mostly my art, i love painting murals, or canvas,ceramics, if you watch the HGTV or DIY network channels, thats me, i love that stuff.But sometimes i just can't do anything, i'll have to wait until i'm able.I use to be depressed, but i pulled myself out of it, i'm mostly ANGERED, toward the medical doctors i see.I'm frustrated, and i'm looking for a new dr, i hadn't told my Dr, now that she's fired, i want to wait. I turned in her network physician( neurosurgeon) she refered me to because he was rude, arrogant, disinterested, i drove 2 hours to see him, and only in the room  with him for 5-10 minutes. I walked out crying , and the receptionist gave me a survey to fill out, so i did, while crying, i told her to give it to him, i didn't want it to be anonymous. Well since my family Dr found that out she won't return my calls, she since denied me to have a MRI of my brain done to check for MS, and she discontinued my pain med. I know it was all becuase of that. it's very unfair.I have fibromyalgia, CFS,DJD,crohns, osteopenia & arthritis of sorts, herniated disk at L3&4, spina bifida occulta, lordosis, and slight curvature to the left. Pins & needle pain up and down both legs, heavy leg feelings, i have had temp paralysis for an hour so sometimes, they give out on me alot, burny achy buttocks & legs and arms to the hands, loose my grip, drop things sometimes. Dr knows once i was dianose with neuropathy and was on 1800mgs for that, but since i've been with her for the last 3 years, she hasn;t treated that.The pain meds that i do get to have is tramodol which helps but not enough. I'm thinking some of these are MS symptoms, i also think perhaps i may be a diabetic, i get very ill when i don't eat or keep some food in me, always thirsty. MS Diabetes is in my extended family. I'm just venting, wanting to see if anyone here has any info for me, or just meeting friends, i've lost my best friends due to these issues, i can't go when she wants to go, so she no longer talks to me, that caused me to be sad for a long time, but now, it's whatever, i don't dweal or her, i just have a hard time trusting women friends. I have a good hubby though, he helps me always.  Dr's have done all the anti depressants, i refuse anymore, i gained 30+ lbs in the last year & half, i take soma, ambien for sleep, which it give me vivid dreams, some are pretty scarey,tramodol is the major one, i've been on that for over 4 years. the med that i said she took away from me at the top of page was lortab 10, she was refilling that too, until i made the complaint about the other Dr. I got screwed over, crazy thing is, i didn't do anything wrong. I'm 35, and tired of being judged labeled, seeking HELP is awful.I have a whole month until i meet a new family doc.My legs have tremors, sometime it won't stop so i went to local ER and they diddn't have a clue, even though i told them neuropathy, they sent me home empty handed almost, the diagnoses was caffeenism, i only had 2 dr peppers that day, the nerve, they're idiots.
I can't trust any of them i feel.
 
well thats me, some of me, theres other issues, but that can come later, i am attending PT though, i was very sore yesterday.
Hugs,
Angel


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Reply
 Message 2 of 8 in Discussion 
From: DanSent: 5/31/2007 1:51 AM
Welcome to the group, Angel.    You've found a group of people who know what you're going through.  Most of us have had the same problems with doctors at one time or another. 
 
Couple of questions...  First, what part of the country are you in?  Wait.  You said you were in Virginia, right?  East coast.  Figures.  And that's really close to Washington.  You can thank John Ashcroft and his war on Drugs for that attitude against drugs for treating pain.  Things got noticably worse after he took office, though truth be told, they were no picnic under the previous administration.  Washington is worried we will get addicted to our pain killers.  Well La Tee Daa.  Idiots!!! 
 
They don't know the difference between addiction and dependence.  We're doing out best to educate them.  But it's slow.  They don't seem to be too bright. 
 
Anyway, we all understand.  That's what's important. 
 
 
Oh, yeah.  I almost forgot to tell you.  I'm Dan, one of the managers. 
 
Over on the left is a lot of information about Chronic pain .  Let us know if you have any questions. 
 
Welcome again. ]
 
Hugs and lots of love,
 
Dan

Reply
 Message 3 of 8 in Discussion 
From: MSN Nicknamesaphblue27Sent: 5/31/2007 4:23 PM
Thanks Dan,  and im about 20 minutes north of Va tech, blacksburg.
 
Hokie Pride!

Reply
 Message 4 of 8 in Discussion 
From: MSN NicknameDale1955omega420365Sent: 6/1/2007 10:02 PM
Welcome Angel and sorry that your doc is being so abusive....thats what it is a form of abuse....anyway.this is a great group with some very good support and most of all understanding to what we have to go through as chronic pain people....this groups helps us do that glad you found us......Dale

Reply
 Message 5 of 8 in Discussion 
From: MSN Nicknametomcat5162Sent: 6/2/2007 5:13 PM
Hi Angel,
I'm Debra but go by tomcat here on the boards and I'm glad you found us.  We are a great group of folks if I do say so myself!  You have found folks who know what you are going through because we are in the same boat as you are, or we have been there before.  You are no longer alone.  That means so much to a chronic pain person.  You are no longer alone.  I related to your statement about your friend.  Yep, I don't have any left either.  It's hard to be spontaneous when you suffer chronic pain.  (I wish my husband would fully accept that fact) 
 
I'm so sorry for what you are going through with your doctors right now.  It sounds horrible what you went through with the neuro recently.  And you should file a complaint with the medical board about your current doctor cutting you off of treatment in the middle of treatment because of what happened with another doctor elsewhere.  That should be against rules of some sort or another.  Did he or she send you an official letter informing you that they were no longer treating you?  If not, they have definitely broken your rights  to treatment.  (I worked as a medical office manager prior to going out on medical disability)  If it were me, I'd file a complaint with the state medical board against them if they refused to see me again or refill my medication.  And it sounds like that is what has happened to you.  But that's just MY opinion.
 
I see that Dan already pointed out the good information over on the left of the boards.  Our group discussions usually happen under the "general" board.  Please join us there to post.  Few people check the "bio" board very often.  I just happened to come in today and look for someone else's bio and saw yours.  I'm glad I did because I got to meet you.  So please come on over to the general board so the rest of the folks can greet and meet you too.  You can tell them you posted your bio and they can read more about you that way. 
 
Looking forward to getting to know you better!
tomcat
asst mgr

Reply
 Message 6 of 8 in Discussion 
From: Hannah.Sent: 7/12/2007 10:57 PM
Welcome Angel.
I just noticed you posted your bio, I am sorry about the hard time you are having getting treatment for your pain.  Have you had physio therepy at all?  How long have your disc been herniated?  Were you told to rest until they healed?
I'll post a welcome over on general so the members will be aware you have joined us.
My oldest son has mild  Spina Bifida and Scheurmmans Disease.
 

Reply
 Message 7 of 8 in Discussion 
From: MSN NicknameCyndyK2Sent: 7/13/2007 6:24 AM
Hi, Angel, and welcome to the family!  I've either worked with or been a patient of many, many neurosurgeons and neurologists, and I can count on one hand the ones that HAVEN'T been pompous asses.  Almost to a man they consider themselves God's gift to mankind, and as a general rule, they've been wrong.  I can still see the so-called "world-famous" neurosurgeon my parents used to take me to when I was a child and teenager for epilepsy consultations.  At the time, I was 5'7" and weighed 140 pounds and walked two miles a day; I was in the best shape of my life.  And here's this bozo, about 5'5", pushing 400 pounds, so fat he couldn't get within two feet of his desk, a smoker, and telling me to go on a diet!  Is it any wonder I ignored him? As an x-ray technician, I have worked with many neurosurgeons and neurologists while they did myelograms on their patients; most of them are not kind or gentle to their patients, nor do they warn them of the dangers of picking their heads up after the procedure; they assume their nurse or the x-ray personnel will do so; most of their nurses are as arrogant as the doctors themselves and don't bother, either.  I don't blame you one little bit for what you did in that survey, and I agree with Debra that you should report not only your primary care doctor, but the neurosurgeon, as well.  They were both acting in an unprofessional manner, and I'm sure you aren't the only patient that has been affected to your detriment. 
 
As for neuropathy, there really ISN'T much that can be done for it medically.  I know, I have it.  I take Alpha Lipoic Acid, which is a non-prescription supplement.  I also am careful to wear good socks and sturdy supportive shoes like cross-trainers whenever I am out of bed.  Because my feet are so numb, it's vital that they be protected from injury. 
 
Has your doctor done a knee-jerk reflex test on you?  My neurologist did one on me and told me that MS patients have an exaggerated knee-jerk reflex.  I have almost none.  That was a considerable relief to me.  With your spinal problems, I don't know if the same would apply to you or not.  It can't hurt to find out, though.
Cyndy

Reply
 Message 8 of 8 in Discussion 
From: MSN NicknameBetween_Lines_And_VersesSent: 4/23/2008 11:23 PM
It boggles my mind when drs. book 5-6 patients in one hour, billing each one or their insurance out of greed, and then spending so little time to help them, lacking compassion or understanding! Did they become a dr. strictly for the money? Allany of us can do is try a new dr. There are so many dr.s who do care about the health and pain of their patients, so please do not give up.
 
You are strong to fight off depression. So many find it easy to give up and climb into a shell or turn to drugs or alcohol.
 
Life offers each of us, especially you so much more.
 
I wish you the best.
 
Raymond.

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