How many people

come up to you and say

You are looking good

sometime throughout the day

 

Why does this disease hide

underneath your looks

People don’t know how we feel

It’s not even listed in the books

 

My body isn’t working

the way I think it should

yet people expect you to do

things that you once could.

 

I would like nothing else

than to carry on like before

But I have begun to realize

I can not do it anymore.

 

This has been so hard

to get through to me

that I am not the man I was

and will probably never be.

 

But others aren’t able to accept it

they just don’t seem to see

that things have changed inside you

they are not what they used to be.

 

Although we have been chosen

to live our life this way

I still have started to see how

blessed I am each and every day.