Heres a little twist on a classic.....
Twas the night before Christmas, when all through the site
Not a PKD sufferer was feeling just right,
The people that have the disease and the people that care,
Were all logged on to chat, which was really quite rare.
The ones experiencing ESRD were snug in their bed,
While visions of transplants danced in their heads,
And the transplant teams wearing their scrubs and their cap,
Started anesthetic to impose a deep nap...
When all of the sudden there arose such a clatter,
We all wondered what was the matter.
We opened the window to the new address in a flash,
Moved our mouses over and logged on in a dash.
The site had some new info for us it would show
Some new breakthroughs in medicine that we should all know.
When I got there, what to my wondering eyes should appear,
But an article discussing a cure for PKD next year,
With a constant reminder of us who are so sick,
I knew in a moment it must be St. Nick.
More rapid than eagles our coursers they came,
To log on to the site and tell them our name:
"Heres, Robin! now, Cathy! now Debbie and Susan!
On, Bridget! on Judy! on, Lori and Lin!
To the top of the list! to the top of it all!
Now log me on! Sign me up! Give me a call!"
As fast as possible our fingers did fly,
To tell them we wanted to give it a try,
So on to the site the coursers they flew,
All of us here, and some other ones too.
And then, for a moment, I wanted some proof
To make sure this wasn’t just some kind of goof..
As I thought in my head, as it was spinning around,
How wonderful this was, this site that we found.
It had all this information for us to peruse,
And most of us figured what do we have to lose.
Just then I pictured Santa with the bag on his back,
And what he would give when he opened his sack.
His eyes -- how they twinkled -- his dimples how merry!
His cheeks were like roses, his nose like a cherry!
His droll little mouth was drawn up like a bow,
And the beard of his chin was as white as the snow.
The stump of a pipe he held tight in his teeth,
And the smoke it encircled his head like a wreath.
He had a broad face and a little round belly
That shook, when he laughed, like a bowl full of jelly.
He was chubby and plump, a right jolly old elf,
And I laughed when I saw him, in spite of myself.
I could remember the magic of him in my head
And for some reason knew I had nothing to dread.
Even if this all was some kind of quirk,
Comprised by some evil minded jerk,
I know in my heart, from my head to my toes,
That someday we will all be free of our woes.
We are a unique bunch, I’m sure you can see,
All of us here who are experiencing PKD.
The day is coming, where we will feel right,
"Happy Christmas to all, and to all a good-night!"