When my SOM symptoms began: October 2003
 
When diagnosed: Properly Diagnosed Feb 2007
 
Type of doctor: Optimologist / Nuero / MD
 
SOM eye - Right or Left: Only Right eye
 
My symptoms: Shimmering, Shaking, jumping vision in my right eye. Severe fatigue, depression, and anxiety. Extreme pain behind the eye. Disorientation.
 
Symptom triggers, if any: Emotional personal stress, Extreme temperature changes, Humitity, flashing lights, rain on the windshield, Tired eyes, fatigue, poor diet, working out and breaking a sweat (Over doing it). Prolonged forced focus.
 
Wear glasses? What type/kind: Yes, Have the new Prism on Right lense right now to try out...reminds me of a color form :) Will be able to have it inserted permately when I have to get new glasses. It has helped the pain behind my eye. Takes away some of the strain.
 
Is SOM eye weaker or stronger than "good" eye?: Weaker
 
Treatments for SOM: Prescription meds: Yes or No: Yes
Med name, dosage, how long, results 1.  Trileptal 300 MG 2 times a day. Increase 300 MG if need to control the eye muscles. 1 year
Med name, dosage, how long, results 2.  Klonopin. As needed to help ease anxiety. 1MG pills. 3-4 yrs
Med name, dosage, how long, results 3.  Lexapro. 20 MG per day 1 year
Med name, dosage, how long, results 4. Provigil 200MG a day. 4 months. Brings back the energy that I lost with the other meds.
 
Herbs. Legal only. List all:  NO
Herbs. How much, how long, results: 
Herbs. Where obtained:

Accupuncture.  Type: NO
Accupuncture. How long, results:

Massage.  Type: NO
Massage.  How long, results:

Chiropractic. Method/type: NO
Chiropractic. How long, results:
 
 
Surgery.  Type: NONE I am not symtomatic enough 24 7 to contiplate surgery
Surgery.  Results:
  
 
Other conditions I have:
Symptoms. How long. 1. Twitches 3-4 yrs
Symptoms. How long. 2. Unbalanced 4-5 yrs
Symptoms. How long. 3. Confusion (Not being funny) :)
Symptoms. How long. 4. Muscle tense up.
Symptoms. How long. 5.
Symptoms. How long. 6.
  
Possible connection(s) to SOM: All
  
Current SOM status: In occurrance right now. My life has completely changed with my new Doctor. Dr Van Stavern from the Kriesge Eye Institute in Michigan has saved my life. His research is helping teach SOM to up coming optilmoligists at Wayne State University. It took me so long to find this doctor...and it was by chance that I was able to meet him.
  
Current age:34
Gender:Female
  
Additional thoughts:

I was mis diagnosed with Optic Nueritis for over 3 years...I will never take steriods ever in my life unless I was on my dealth bed. The other doctors were so focused on my maybe having MS...they focused less on my eye problems.

I am ashamed that when I am in occurrance, I do hide out and try not to be social. I have been seeking help from a Pychotheropist for a few years now. I still can not get over my personality change when my eye starts to shake and shimmer....
  
How I found this support group: Web site search
  
Have you shared this group/site with your doctor/doctors?:    no    

Sissyshell, again, I'm sorry that I didn't have access to my regular computer, but better late than never, huh?