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Superior oblique myokymia[email protected] 
  
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SOM History/Data : 2. My SOM journey begins
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 Message 4 of 5 in Discussion 
From: MSN Nicknamekelbel59  in response to Message 3Sent: 3/15/2008 4:18 PM
It's Kel....here's my story! 
Onset of symptoms, how long ago/i.e. # of years:
approximately 15 years ago 

Types of symptoms
Immediate jumping of the eye....(up and down jerking feeling)

Which eye has SOM, right or left
Right eye

When you sought diagnosis
after about a week
Who diagnosed you
A pediatric opthalmologist

How you found/was referred to that person
Was already going for ocular hypertension

Proposed causes, i.e. head injury, illness
None that anyone could figure out

How SOM was explained to you
Muscle spasms of the superior oblique muscle in the right eye.  Nothing could really be done for it, and it was an inconvenience that I would learn to live with. (One tech said her husbands eyelid twitched all the time....duh)

Your feelings and response to your diagnosis
I cried a lot, because they claimed to know what it was, but really had no idea what it was like to have this. 
The first treatments suggested to you
Artificial tears...one doc thought it might be dry eye.

Your response to those suggestions, how you felt, what you did or did not do
I knew it wasn't dry eye.....told them I'd keep coming back until they saw the eye twitch.  Which I did.

Remissions
A year after onset, and every few years I have a little spell.
Research that you might have done on your own
Just this site.

Current SOM status
Remission

Your age
almost 49

Your gender
Female